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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, June 3, 2008

fecal body odor paper by Theodor Rosebury : 1973 (part 1 of 3)

Written in 1973, the last paper in pubmed by a distinguished oral-microbiologist whose 1st paper in a pubmed search is from 1929 (which concerned acidophilus and dental caries ? ), you could say Theodor Rosebury (unknowingly ?) coined the syndrome name many sufferers use to define their odor problem today ... fecal body odor.

In internet searches of his name, he has been described as the 'grandfather' of oral microbiology, so maybe it was to do with halitosis, which wouldn't fit many of our 'profiles' of the problem (but would for others).

Sadly there is no abstract to give us a clue, and we don't have access to the paper. It would be fascinating to see what it said. It may not be relevant, or maybe it was a remarkable insight. It was written 3 years after the first paper was published that proposed the syndrome 'fish body odor'.

If anyone can help us obtain a copy, that would be great.

http://www.ncbi.nlm.nih.gov/pubmed/4739385

Experts opinion on Rosebury : http://jdr.iadrjournals.org/cgi/content/full/85/11/990
Review of Roseburys award winning book, Life on man : http://www.grg.org/trosebury.htm

related posts (this is part 3 of 3)
part 2 : http://mpdela.blogspot.com/2008/06/rosebury-1973-letter-in-jama-on-fecal.html
part 3: http://mpdela.blogspot.com/2008/06/1972-dobson-fecal-body-odor-reply-to.html

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