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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

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or contact
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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

Friday, September 5, 2008

Update 3 on the UK self-testing TMAU (urine test) saga






Latest:
Emed have said by email they would act as 'referrer' for the TMAU urine test via TDL (the doctors laboratory). That would make the price of the TMAU urine test £160 + £20 annual membership of Emed + £15 Emed 'consultation' charge. A separate post will be done about Emed later. Unexpected procedural problems cannot be predicted at the moment, so unfortunately anyone choosing this route does so as a pioneer.

Presumed procedure would be like:
Join Emed (£20)
Tell them you want to do the TMAU urine test via TDL (£15 + £160 for test)
They contact TDL who send a kit out.
Presumably there is some sort of proof that TDL need that a Dr ordered it and this goes with the kit on return (?).

An important remaining issue is the testing procedure of TDLs TMAU urine test. They have been emailed about this and you will be updated once they reply.

The 'sample code' on the TDL site lists the TMAU urine test as being 'PU', which they list as meaning :
30ml aliquot from a 24-hour urine collection with 10ml of 0.1N hydrochloric acid added 
– state total volume
http://www.tdlpathology.com TMAU urine test page
http://www.tdlpathology.com sample code page

This is the same supplier that Medichecks use.

If anyone has any better ways to enable direct testing, please let us know

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