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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Monday, September 8, 2008

Using Windows Moviemaker to record audio/video

moviemaker for body odor start>all programs>accessories>Windows Moviemaker

A powerful way for the body odor/halitosis community to express themselves/communicate/raise awareness or just have fun etc, may be by making their own videos or audio recordings.

A lot of people do not know how to record on computers. One option for recording would be using the Windows Moviemaker program that is installed in Windows XP.

The good news is, it's easier to use than you think :)

http://www.microsoft.com/windowsxp/using/moviemaker/default.mspx

http://en.wikipedia.org/wiki/Windows_Movie_Maker

Example instructions on how to record audio.

For Windows XP:

To only record audio:
plug in your mic
open Windows Moviemaker: (start>all programs>accessories>Windows Moviemaker)
click on the 'mic' icon

to record: click start
to stop: click stop
it will then show a box to save it

by default it will save your file as a 'narration' and save it to the 'narration' folder'
to save it to your desktop instead:
click on the desktop icon on the left-side of the box
you can save it as 'narrartion' or change the file name to anything

it will be saved in WMA format, which you can now send in an email or post somewhere etc
you can do all sorts of things with moviemaker
e.g. add one or more photos to the audio
edit videos/audio
add titles/effects

You can recite your own poetry with pictures or do whatever you want. We look forward to seeing what you create :)

useful tip: when about to open moviemaker, right-click instead and choose 'send to desktop'.

Helpful screencaps below:

how it looks on opening Moviemaker


how it will look when you want to record only audio


how it will look when you stop recording audio


an example of how a photo-audio editor outlay would look

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