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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
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TMAU UP Podcasts

Videos : TMAU stories

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
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RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

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Blog Archive

Tuesday, January 27, 2009

Orphanet and list of potential contacts for trimethylaminuria help






Perhaps if anyone enquires by email, they may agree to do testing. Adult Metabolism Units would seem natural first choices of contact.While it is very difficult to find known testers of metabolic body odors and/or halitosis, the technology is probably readily available worldwide in, for example, hospitals. Detection of the smelly compounds probably being possible using a gas chromatography/mass spectrometry machine or by Proton NMR spectroscopy or similar. These are usually present in metabolism units in hospitals, usually for pediatric units or adult metabolism units.

With something like trimethylamine, it's presumably a case of them calibrating the GS/MS to look for that. For those who feel trimethylaminuria doesn't seem a sole answer, they could possibly be tested for any volatile organic compounds rather than just trimethylamine, or just malodorous volatile compounds.

Orphanet seems to be a European based website giving information on health problems and possible connections. In their section on TMAU, they have a list of 'clinics' and 'diagnosis centers'. On first glance most don't seem to list trimethylaminuria, (although more do than expected), but they all seem to be metabolism units of some sort and will have the technology. Usually they use them to detect amino-acid disorders or organic acids. Perhaps if anyone enquires by email, they may agree to do testing. Adult Metabolism Units would seem natural first choices of contact.

These links (and the ones in the sidebar in the section : "Peer Evidence for Experts") may be helpful in persuading them about trimethylaminuria and it's prevalence :
www.ncbi.nlm.nih.gov/bookshelf/br.fcgi?book=gene&partid=1103
http://www.orpha.net/consor/cgi-bin/OC_Exp.php?lng=EN&Expert=35056


Listed contacts for trimethylaminuria on Orphanet
Orphanet trimethylaminuria link : clinics
Orphanet trimethylaminuria link: diagnosis

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