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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Saturday, January 29, 2011

MEBO RESEARCH IS NOW A REGISTERED USA PUBLIC CHARITY




It is with great satisfaction that I announce to have received a letter dated January 19, 2011, from the United States Department of Treasury, Internal Revenue Service informing me that,





… MEBO Research has been determined to be exempt for Federal income tax under section 501(c)(3) of the Internal Revenue Code. [Effective Date of Exemption: April 21, 2010] Contributions to you are deductible under section 170 of the Code. You are also qualified to receive tax deductible bequests, devises, transfers or gifts under section 2055, 2106 or 2522 of the Code…

Organizations exempt under section 501(c)(3) of the Code are further classified as either public charities or private foundations. We determine that you are a public charity under the Code section (s) listed in the heading of this letter. [Public Charity Status: 170(b)(1)(A)(vi)].

On behalf of MEBO's Board of Directors and all its members from around the world, I would like to express our most sincere appreciation to the Legal Clinic of the College of Law of Florida International University for the invaluable pro-bono contribution it has given MEBO, first in its registration as a “Not for Profit” Corporation at the Florida Department of State, Division of Corporations on April 21, 2010, followed by their extensive process of preparing IRS Form 1023 to apply for Public Charity Status with the Department of US Treasury. Without this FIU community outreach program, this accomplishment may not have come to fruition anytime soon.


WHAT CAN CHARITY STATUS OFFER
OUR INTERNATIONAL COMMUNITY?

The underlying benefit of MEBO Research being classified as a Public Charity by the US Department of Treasury is the recognition of the integrity of the company, its Board of Directors, its past activities, and future commitments in accordance with MEBO’s Articles of Association and Bylaws. This prestigious status instills confidence in private and public foundations so as to encourage awarding research funding to MEBO and other entities who have united with MEBO to strive to achieve our objectives. It is MEBO’s unwavering commitment to uphold this distinguished honor by humbly, benevolently, and with determination carry out its very important mission – to promote research into all types of body odor conditions in order to find the appropriate treatment and cure, and most significantly, to persevere in extending the fruits of this benefits to all sufferers no matter what part of the world they live in. This is a tall order indeed, and so far, it has taken MEBO three years simply to achieve Public Charity status, so even though we know we that we've only just begun and still have a very long road ahead, we will continue moving forward until all is achieved.

More detailed explanation of MEBO’s activities in this respect will be forthcoming as projects and programs currently being developed are initiated, so that anyone interested in participating may do so. I look forward to working with experts, labs, and other non-profit organizations with whom we have already established a close working relations, as well as with each and every sufferer anywhere in the world who turns to MEBO for support, testing, research, and guidance.

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization

2 comments:

Anonymous said...

Hello everyone.

This is Cheryl Fields, I am living in Wisconsin now. I am working lots of hours and I am not available as much online or via the telephone. I just got back online since September 2012! I was so busy, I didn't have time to purchase a computer! Gosh!

Since April 5th, 2013, I am online again. You all can e-mail me or call me (262)-764-0737, and leave a voice mail message, please repeat your number twice and state TMAU, so I will know what the call is regarding.

Keep your head up!

Remember it is NOT what happens to you, it is how you respond to it!

Very Sincerely,


Cheryl Fields, MBA, Ph.D. (ABD)

Apr 14, 2013, 2:38:00 PM
Maria de la Torre said...

Welcome back, Cheryl! How wonderful it is to have you back with us again! For those newer visitors to the blog, Cheryl has been a very active member of our community, even before MEBO’s existence. Her contribution to MEBO as a US Community Outreach Director has been very much appreciated. Click on the link below where we showcase the fine work done by our Community Outreach and Public Relations Directors both in the US & UK. http://mebocommunityoutreach.blogspot.com/

Glad to see that you’re going to be around now, Cheryl online and to receive phone calls!

Apr 14, 2013, 5:28:00 PM
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