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Sunday, March 27, 2011

International support needed for UK TMAU sufferer's Raising Awareness Campaign, Part 1

Today is the last day we, as an international community, can unite with the London TMAU sufferers spearheaded by Karen James, who met on Friday 18th March to write a brief testimonial asking the UK Medical Research Council, General Medical Council, British Medical Association, Royal College Physicians, and more to simply Raise Awareness. You can find ideas of what to write about in your testimonial from the thread (pages 1 and 2) started by the group leader, malory, in the Body Odor Support Forum.

Our community is so very much stuck in a loop that has become such a monumental obstacle to break, and here is a 'loop' that we seem to be 'stuck' in, and anything you write that can help break this loop would be a great accomplishment.



-->
Little is known in the medical community about BO conditions, including TMAU, due to lack of funding for research

-->
doctors dismiss us as delusional without pursuing tests (only TMAU test exists), because they are not informed about uncontrollable body odor conditions not related to diseases, intermittent strong body odor conditions, and how only a certain percentage of the population detects the odor and react strongly in an aggressive manner against the sufferer

-->
only very few sufferer find ways on their own to test (only TMAU test available in few places in the world and is costly). Persons suffering from body odor conditions that test negative for TMAU have no other test to turn to for answers because they have not been designed due to lack of funding for research

-->
little is documented on TMAU and other BO conditions

-->
companies don’t want to invest in researching and developing devices and treatment options for our community without more data that justifies the expensive research regulated by government agencies

-->
brings us back to the beginning of this cycle…



We need to let them know that we exist in greater numbers than they think, except that we are "under-researched" and "under-tested."

Everyone is invited to copy and paste anything said in the Body Odor Support forum and in MEBO's website and/or Blog to write to these organizations. All we have to do is to send it to malory today, and she'll submit it as a group effort. This is our opportunity to break this loop. Let's make our presence felt!

María

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