Admin Control Panel

New Post | Settings | Change Layout | Edit HTML | Edit posts | Sign Out

MEBO - UBIOME study 2018

MEBO Gut Microbiome Study
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 85/100
3 kits per person

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU stories

MEBO Map Testing & Meetups

Full details :
want listed ? contact
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect

£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14



Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

Thursday, July 21, 2011

Lady on UK mid-morning TV show talking about her TMAU (Trimethylaminuria)

Thank you Karen for bravely raising awareness so articulately on a high-profile TV show. Our community is the benefactor. In the 8 minute interview, Karen manages to explain that 'fish odor syndrome' does not cover the range of smells people can have. She also mentions the MEBO Research petition, which is part of the campaign by our international patient advocacy group to raise awareness, reach out to sufferers in the community to provide support, and to initiate research.

For the last 10 years, 44-year-old Karen James has suffered from Trimethylaminuria (TMAU) otherwise known as fish-odour syndrome.

Her breath constantly smells of rotten eggs and the problem also affects her sweat under times of stress. Unfortunately there is no cure.

Karen’s symptoms started showing following some travel injections and a recurrent throat infection but she was told by doctors to just live with it. It was only through her own research that she find out about TMAU.

Karen, who joins us today alongside Dr Dawn, describes her condition as an unrecognised disability and finds it difficult to lead a normal life.

Trimethylaminuria UK Support Website
Bringing together people who have Trimethylaminuria (TMAU) , their families, friends and healthcare professionals in a positive, caring and supportive environment.
itv, this morning

SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online at no extra cost to you.
MEBO gets small commission from Amazon.

Use your credit card
to make your donation.

A EURORDIS and NORD Member Organization 


Post a Comment