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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Friday, August 19, 2011

Cheryl Fields, MEBO's Community Outreach Director


Cheryl Fields, known on the forums as "Dr. StillStanding" is a long-time friend to all in the body odor and halitosis community. Cheryl developed an odor problem in the 1990's, but has not let it change her positive attitude towards life. As well as following a successful career in business, she has taken it upon herself to help everyone with a body odor or halitosis disorder as much as she can and is always involved in campaigning on behalf of the community. For years she has given the community her home phone number and email address so that sufferers can contact her at any time to talk to someone who knows what they are going through.


We are proud that Cheryl has accepted the MEBO Research offer to be our unpaid volunteer Community Outreach Director
Cheryl was diagnosed with trimethylaminuria in the early 1990's and has been an ardent supporter of any endeavor that helps the community. She is particularly interested in being a 'listening ear' to anyone in the community and in employment rights issues. We are proud that Cheryl has accepted the MEBO Research offer to be our unpaid volunteer Community Outreach Director, so that she can use the MEBO Research platform to reach as many people to help as possible, and to be part of MEBO's other intentions of finding a cure, our campaigns, and helping in any way possible. Cheryl has a Bachelor Degree in General Business, a Master's Degree in Business Administration (MBA), and is a Doctoral Candidate (Ph.D./ABD), in Human Resources Management, from the School of Business. Cheryl had one daughter, Brittany Michelle, that passed away in 1996 from heart complications.


Home/Voicemail (785)-286-7005
email: cheryl.fields@meboresearch.org




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