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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, October 25, 2011

New study "Influence of diet, medications and behavior on odor"

Aurametrix,
Founded by MEBO Research's
Scientific Advisor,
Irene Gabashvili, PhD
is rolling out a new software solution helping people understand relationships between their diets, medications, daily activities and body odor. As many of you know, Dr. Gabashvili has been overseeing MEBO's scientific projects and has also done a slideshow presentation for MEBO Research found in this blog entitled,'Microbes and Us.'

a new software solution helping people understand relationships between their diets, medications, daily activities and body odor
The study is anonymous
and there is no charge for participating.


If you would like the opportunity to use this tool, please express interest in an email to,

aurametrix.mebo@meboresearch.org

After you submit your e-mail expressing interest, you will receive a private link with description and advice on how to best use the tool for your condition. You will be able to observe progress of other anonymous participants by checking cumulative results and emerging patterns. One or two month after signing up, you will be asked to answer an anonymous survey. Results of the survey will be discussed on this Blog.

My Personal Experience with Aurametrix

After having used this software solution for only 5 days so far, I have been able to see preliminary correlations between my diet, medications, and mental state and my personal odor level. I also noted that due to my current diet aimed at controlling my odor, I discovered that I was very low on certain nutrients that I could introduce into my diet without it triggering my odor. I have also noted that I need to discuss with my doctor whether there still is a need for me to continue taking folic acid since my copper level intake is too high. Folic acid served its purpose while I was taking another medication, but I am no longer taking the other medication.

These discoveries has only touched the surface of what I have learned about my health, nutrition, and body odor management, and I am looking forward to learning more in order to have greater control over my physical and mental health and my body odor.

María

Petition
halitosis researchMaría de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
The MEBO Forum Please sign the MEBO Petition

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