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Wednesday, November 30, 2011

TMAU DIET ADVICE for Lady with TMAU on TV

Note : Video is currently blocked in UK.
UK viewers will need to watch the whole programme here : Food Hospital





TMAU DIET

Our very own very brave, Ellie James, who lives in Bristol, England, did not receive her TMAU diagnosis until after having struggled with TMAU and diet uncertainties for 11 years. Our community embraces Ellie in profound gratitude for having come forward and doing this interview to raise awareness in all levels of society, including the international medical community, sufferers of body odor, and all persons interested in understanding what life is like as a body odor sufferer. Thank you, Ellie, this wonderful Channel 4 programme "The Food Hospital," and the experts in this video for providing such valuable information about nutrition and the dangers of a self-determined and self-imposed restricted diet many body odor sufferers desperately resort to in order to control one’s odor.

Our community embraces Ellie in profound gratitude for having come forward and doing this interview to raise awareness in all levels of society
As body odor sufferers, we have a series of hurtles of seemingly monumental obstacles we must build our strength up to face and overcome. Our first obstacle is to find the courage to get tested, and the second obstacle is to accomplish all the impediments that arise in the process of getting a TMAU test, i.e., physicians not having heard of this test and thus blocking the process. In some countries, it is either very expensive to get tested, or there is no opportunity at all to be tested for TMAU. And there are virtually no tests in existence for other forms of non-illness related systemic body odor conditions.

Whether a sufferer accomplishes getting tested or not, and even if one is “privileged” enough to get answers by being in the 20 to 30 percentile of the people who test positive for TMAU, we join Ellie in believing that our only available resource is to turn to the internet for diet guidance from other sufferers (non-experts). Sadly, we find ourselves entering the realm of seriously limited information, or blatant wrong information from non-experts, about, “how to control this odor condition and still remain healthy.” But unfortunately, MOST sufferers from around the world have no other recourse but this unprofessional guidance. Thank you Ellie for sharing this wealth of this information with all of us! If people like you chose to not share information as you have, we would be in a very hopeless state indeed.

Most body odor sufferers, TMAU positive and TMAU negative, throughout the world do not have the advantage of having at their disposal professional nutritional guidance to be able to determine what diet can control their particular odor while still allowing us to stay healthy. So the international medical community and sufferers alike, turn to the very few experts, such as those seen in this video, for guidance. In Ellie’s case, even after having had a positive diagnosis, she was fortunate enough to eventually receive the nutritional information she desperately needed from these experts to help her develop an effective, healthy diet that allows her to control her odor to a large extent.

This is precisely one of the reasons why MEBO Research came into existence – to become and intrument by which all sufferers, physicians, and nutritionists in all countries in the world may have access to this and other diagnostic tools, treatment options, and to raising awareness so that physicians may also be informed of the limited treatment plan available. We hope that this blog serves this purpose well.

However, even the very compassionate experts seen on this video and a few others around the world have been hoping for years to get large grant funding to be able to further research TMAU and other body odor conditions in order to best help us. This is MEBO's other primary purpose for existing - to assist in every way possible to support these experts in obtaining funds to initiate research into all areas of body odor conditions, treatment, and cure. Scientists in the UK and other countries in the world would love to receive the grants necessary to carry out significant research to study at a deeper scientific level all the causes of body odor conditions, including TMAU, to then be able to develop more effective and permanent treatment for these body odor conditions.

As the program points out, “Hormones, illness and diet can all determine our particular smell.” This means that much more in-depth research needs to be done to understand the true dynamics of hormones, the environment (microbiota), and illnesses in relation to the various body odor and systemic halitosis conditions. But we can't stop there, we also need to research effective treatment options specific to the various causes of body odor conditions.
Again, we thank Ellie for the love she has poured over our whole community of sufferers and their families by stepping up and proactively pursuing the possibility to be part of the solution!

María

halitosis research
María de la Torre
Founder and Executive Director

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