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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, December 29, 2011

Calling all creative people

send in jpgs
One problem with blog posts is that they can look very dull without some image to catch the eye, which also acts as a reminder of the post too.

Images wanted to brighten up posts
MEBO Research would greatly appreciate if anyone would like to send in jpegs/pngs etc that we could add to the posts to give them identity. We would especially like uplifting images, but any type will do. Images of nice views or objects or animals or symbolic or abstract or even of yourself if you wish, would be greatly appreciated. Or it could be art. If there is some credit or phrase you would like beneath the image, we will see if this is possible too. If you are concerned about 'exif' details in the image, either you can remove it yourself before sending, or we will delete it for you before publishing. The images will end up in our google picasa page by default.

Original music wanted for MEBO Research videos
Currently MEBO have some videos with music, but it is the song copyrighters who get the income from the google ads on them. If we occasionally make videos, it would be great if we could potentially raise some money for MEBO by getting any ad money ourselves. To do this we would need original music (not copyrighted). If anyone would like to send in copies of their original music (eg mp3, wmv, audio formats) we will keep it in case we can use it in a video anytime. We will credit the person or add their message if they wish.

You can send in any image or music to : meboresearch@gmail.com

So let your creative juices flow and we will see what we can accomplish. Thank you

body odor petition
MEBO Research

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