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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Friday, December 2, 2011

MEBO Research International Skype Conference Call Group


ALL ARE INVITED TO JOIN THIS EFFORT

by downloading and using Skype for free
(see simple video instructions below)


(See 'Comments' at bottom of this post)

As posted on Monday, November 28th, one of MEBO's member in Seattle is organizing an International Skype Conference Call Group that will meet periodically to discuss special topics of concerns that sufferers can bring forth for brainstorming and research regarding body odor and halitosis. He and those who have expressed interest in this project have been brainstorming on topics and schedules for group discussions, and they would love for you to join them. This community opportunity across the world should prove to be a new and very interesting concept that we hope will bring some answers and guidance to many of us.
This presents sufferers from our international community with the opportunity to meet other sufferers and to discuss your concerns.
Here, your questions and experiences can be addressed, and as all our conference calls, you don't have to speak, you can just listen while on the call, if you prefer. All you need to do is present them in advance in Skype Chat. The beauty of this program is that you can raise questions through Skype chat before the group conference call, so that members of the group can research it in advance and come to the call with researched information. At the same time that the Skype call is taking place, links can be copied and pasted in Skype chat for all to see.

This presents sufferers from our international community from around the world with the opportunity to meet other sufferers and to discuss your concerns. The free Skype program does not allow video calls when there are more than two on the call. In addition, unless you click on the Video call button and turn on your camera, there is no way anyone can see you.

Here, your questions and experiences can be addressed...you don't have to speak, you can just listen while on the call, if you prefer.
Once you have downloaded Skype, you can add the group leader to your contact list by clicking on the "Add a contact" box on the bottom left, and invite 'skunkhugs'. He will reply to you as soon as possible.




I'm looking forward to seeing this project up and running soon! Thanks, skunkhugs for organizing this much needed program.

María

halitosis research
María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
The MEBO Forum Please sign the MEBO Petition

body odor petition
MEBO Research

2 comments:

Anonymous said...

Hi .This is member 'skunkhugs' . I now have 13 contacts for skype . (Still waiting for Arun to make 14 =) . Feel free to fire me any questions or concerns that should be raised on the future conferences here or on skype .

Members from this site, Arun's forum and Jimi's BB&halitosis site have asked for more frequent chats and calls . I hope to have the group up and running in the coming weeks with the help of others .

Stay Positive =)

Dec 4, 2011, 2:23:00 AM
Anonymous said...

Make that 14, Will from Cali is in.

Dec 15, 2011, 2:27:00 AM
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