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PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

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DATE: 2 MAY 2017
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Start : Aug 2016
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Friday, January 27, 2012

Fifth International Rare Disease Day by EURORDIS



A WORD FROM CHERYL FIELDS, MEBO U.S. Community Outreach Director
to our international community




February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries. On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan “Rare but strong together”.

Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand! Get involved!

29 FEBRUARY 2012 is International Rare Disease Day.



***During the month of February 2012, this year we will be raising awareness about TMAU for the entire month of February 2012. This is our time to stand, shine, and make positive contributions about our disorder/disease. Please stand by for additional details on how you all can help make it happen.


Cheryl has informed EURORDIS of the following:


We [MEBO Research]are asking for volunteers from all over the world to contact their local media outlets to do a story on MEBO Research and people with TMAU. The goal of the group is to get on CNN international and on the global international television stations.There are TMAU patients all over the world. People with disabilities deserve a fair chance to work, live, and love.

Thank you so very much for your time.
www.meboresearch.org/index.

Very Sincerely,


Cheryl Fields, MBA, Ph.D. (ABD)
Community Outreach Director
MEBO Research
(785)-286-7005, Home Office/Voice-Mail
E-Mail: cheryl.fields@meboresearch.org

Dr. StillStanding----somehow?


She has also written to various rare genetic diseases groups asking for support and participation on International Rare Disease Day, such as the organizations listed below:
  1. Hong Kong Mucopolysaccharidoses Rare Genetic Diseases Mutual Aid Group
  2. Canadian Organization for Rare Disorders
  3. National Alliance for Rare Diseases Romania

Let's show our support to Cheryl, and if you are planning an awareness-raising event in a country that is not listed here, please contact Cheryl at:

cheryl.fields@meboresearch.org, or
emporia962000@yahoo.com

Your participation is greatly appreciated.


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