Join/Watch the weekly
TMAU UP Podcasts

MEBO Private Facebook Group
to join : contact
maria.delatorre@meboresearch.org

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

MEBO TMAU urine test

MEBO Research
TMAU Urine Test
United States only
PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

Click here for
REQUISITION FORM
Incomplete applications
will NOT be processed

SEE UPDATES HERE

1
test
$150 plus
shipping costs
2
tests
$250 plus
shipping costs

TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please.

Test analysis performed in batches of 20 or more

DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

Friday, January 20, 2012

Trimethylaminuria testing in Cardiff, Wales


Trimethylaminuria (TMAU) is currently the only current recognised 'systemic' odor condition, but testing for it through the public health system can be difficult due to lack of awareness.

Medium-term, the way 'specialist treatment' will develop in the public health system will probably be via Adult Metabolic Units (or similar name), with the person being referred to see a Metabolic Consultant (or similar title), and possibly see a dietician and genetic counselor.

Adult Metabolism Units are quite common now in major city hospitals (usually one covers the whole area). A guess is that while there may be Adult Metabolism Units in most major cities, TMAU still likely won't be on most of their lists yet.

TMAU 'patient service' in Wales
An example would be in Wales UK the consultant, dietician, and counselor approach is already set up at the University Hospital of Wales, Cardiff. They will likely send their samples for testing to Sheffield Children's Hospital.

TMAU patient referral service in Cardiff

0 comments:

Post a Comment