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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Saturday, February 4, 2012

Fundraising project II for $210 : Cheryl's trip to Montgomery to present our case




THANKS TO EVERYONE WHO DONATED FOR CHERYL'S $200 VIDEO!
We collected this amount in only 12 hours! We're such a great group!


Thank you all so very much for your support for the upcoming video.
The video should be up by 15 February 2012.
We have not started shooting for the video yet.
Thank you all again so very much for your contributions, donations, letters of support, Prayers, and just for being there.

Have a great evening.

Very Sincerely,
Cheryl Fields


In fact, we actually collected $240, of which $40 can now be used for one great project that this $200 video can be used for - Cheryl's trip to Montgomery, Alabama, to present our case to the Southern Poverty Legal Center, (SPCL) as discussed in a previous post in this blog. As mentioned in this post, "This organization has a Teaching Tolerance program, which "produces and distributes – free of charge – documentary films, books, lesson plans and other materials that promote tolerance and respect in our nation’s schools." Cheryl hopes to reach out to SPLC to gain legal and teaching tolerance support to promote our raising awareness cause.

With this $40 donation last night and with $100 that MEBO will be putting forth, we are well on our way to raise the $350 needed to cover the very basic expense of this short trip to include airfare, one night hotel stay, and meals. So, we now need to raise $210 to reach this goal. Consequently, the PayPal button is live again. We would love to see donations coming in from new donors, so that each of us carry a lighter burden to accomplish this great feat.

Cheryl is working hard at preparing for this presentation to SPLC with her
  • 1st Project (noted below): Efforts to be accepted in the CNN iReport. Click here to vote for Cheryl to appear on CNN
  • 2nd Project (noted below): $200 for a 4 day shooting of a video of Cheryl's story - Living with TMAU
  • 3rd Project: taking the above presentations and the slideshow above to Southern Poverty Legal Center's Headquarters in Montgomery, Alabama to present our case. For this project, we only need to raise another $210.

Project 3
Cheryl's trip to Montgomery
Target : $210
raised : $165
THANKS TO EVERYONE WHO DONATED!
IT IS MUCH APPRECIATED.







We thank Cheryl and everyone involved in this and other efforts throughout the world to raise awareness that we hope will help us get research grants for scientific research.

María




Cheryl Fields, Ph.D. (ABD)
MEBO Community Outreach Director.
Book uplifting seminars for free.
Click here for details and scroll down
Home/Voicemail (785)-286-7005
email: cheryl.fields@meboresearch.org

Skype Me™!
Project 2: Our community outreach director and long-time friend to the community, Cheryl Fields, usename: Dr. StillStanding, is especially looking to raise awareness about trimethylaminuria at the moment. To do so, Cheryl is hoping to make a video of her about TMAU body odor and halitosis that will be professionally made, that can then be viewed on the internet. This video can and will be used to pursue grants for research.

Cheryl has been quoted a rate of $200 for a 4 day shooting of this video. MEBO Research is giving the community the opportunity to help Cheryl reach her goal of $200 for the video cost by making a specific paypal donate button that will go only towards the funding of this raising awareness video project. Once this fund is raised, it will be announce in this blog, and the specific donation button will be closed. If there should be any excess money in the fund before we are able to close the button, it will go to the main MEBO Fund, whose purpose is to pursue research and raise awareness.

So, this is your chance to help Cheryl raise awareness with a professional video on the subject of TMAU body odor and halitosis.

Cheryl has been a warrior on body odor and halitosis issues for 20 years, and has continuously been raising awareness on the subject of TMAU.


THANK YOU FOR YOUR MUCH APPRECIATED PARTICIPATION!



Quote from Cheryl
I am SICK and tired of seeing people with TMAU HURTING!

I am standing up for TMAU, even if it means folks will laugh at me, make fun of me, or totally ignore it. I don't care. If one person learns about TMAU, that will be one less person that is uneducated about TMAU. Maybe one less joke, one less nasty comment, one less rejection?

Thank you.
Very Sincerely,
Cheryl Fields
Cheryl Fields appeared in this video segment (right) about TMAU a few years ago

Operation 'Cheryl's video project'
target was : $200
Target was achieved in approximately 12 hours (with $40 left over that was transfered to Project 3).
Thanks to the contributors !!

Project 1: Click here to vote for Cheryl to appear on CNN

For many years, Cheryl Fields has been a friend to all the community and has kindly allowed anyone to contact her by phone at anytime if they wish to talk to someone. Now people can also contact Cheryl via skype around the world for free (if you have skype program on your computer).

Cheryl can be contacted by contacting her skype username dr.stillstanding, or you can click on the skype link shown in the box. See her website: The Diversity Project

Link : Download Skype (You can get the free version)


body odor petition

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