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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

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MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Sunday, June 3, 2012

Uniqueness of Human Odor - Comparing Identical twins


Dray's TMAU Class for Beginners


Forensic Science Communications
July 2004 – Volume 6 – Number 3
Research and Technology
Federal Bureau of Investigation (FBI)


Unique Odor in Identical Twins

As the debate about the genetic and environmental cause of body odor and halitosis continues, we examine what studies have been done with the use of specially trained dogs.

The issue of genetic makeup and human odor was studied using scent-discriminating canines and scent collected from three sets of twins. The test subjects included fraternal twin baby boys on the same diet, identical twin baby boys on the same diet, and identical adult twins on different diets.
  1. Dogs were able to correctly identify the fraternal baby twins on identical diets
  2. The identical adults twins on different diets, 89 and 83.5 percent respectively.
  3. The dogs were able to correctly identify the identical twins on the same diet only 49 percent, which is no better than chance (Hepper 1994).
These studies show that dogs can differentiate between identical twins, especially when the twins are living apart...discrimination is more difficult when the differences were geneticIt was found in scent lineup tests when the scent of identical twins is offered to dogs in succession, the dogs could not differentiate between the identical twins. In tracking experiments in which two scents are offered simultaneously and mixed up, the dogs were able to distinguish between the two identical twins (Kalmus 1955). These studies show that dogs can differentiate between identical twins, especially when the twins are living apart. However, discrimination is more difficult when the differences were genetic. (Schoon and Haak 2002A)... For additional reading on dogs scent training and behavior, please see http://mebopawsibilitiessdprogram.blogspot.com/

"Find Another" Training Session Pawsibilities Unleashed Pet Therapy of Kentucky, Inc. 501(c)3 Non-Profit Organization
Dray's training to find similar scents
Founder Liz Norris, Master Trainer AKC-CGC Instructor, and Therapy Evaluator with over 34 years of dog training experience, is the founder of Pawsibilities, with a “train the trainer” approach. Liz is a former U.S. Air Force K-9 unit trainer, including search & rescue (SAR), cadaver detection, drug detection, and K-9 obedience. She has also trained Malamutes as sled dogs, shown on the AKC circuit, been an AKC judge, and has volunteered with her own dogs in multiple SAR missions... She is an official tester for the Therapy Dog certifications and Canine Good Citizen (CGC) tests and Service Dog Public Access Test. http://puptky.giving.officelive.com/aboutus.aspx

María

María de la Torre
Founder and Executive Director

A Public Charity
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maria.delatorre@meboresearch.org
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A EURORDIS and NORD Member Organization

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