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Blog Archive

Thursday, July 19, 2012

EMAIL PROTEST CAMPAIGN TODAY

TODAY IS THE DAY OF OUR
EMAIL PROTEST CAMPAIGN

halitosis research
Please copy and paste the following and email it to the links below. You are invited to modify, add, or omit whatever you like, or you make just copy and paste. Please send an email to each link separately, in order to avoid going on the receiver's Spam folder.


I was extremely disappointed to learn that the grant application for research into the intestinal bacteria of TMAU (Trimethylaminuria) patients and patients with foul-odour-producing metabolic disorders was turned down by the Medical Research Council. This research could have led to the identification of the specific types of bacteria present in the guts of odour sufferers and to the possibility of using fecal bacteriotheraphy/human probiotic infusion as a treatment therapy.

TMAU and other foul-odour-producing disorders are incredibly distressing conditions and, for many, there are no truly effective treatments available. The number of sufferers is ever-increasing and the number of children being diagnosed is also increasing. I would like to urge you to reconsider this erroneous decision and to allow the specialists to research into potential cures and treatments for the condition of Trimethylaminuria as a matter of urgency.

Former campaigns had greater effect when several e-mails and letters were received simultaneously. Our community would be very grateful if you could support us in this venture,


With kindest regards,
[YOUR NAME]


linda.willmott@headoffice.mrc.ac.uk
corporate@headoffice.mrc.ac.uk
felicia.rodriguez@headoffice.mrc.ac.uk
GPSD@headoffice.mrc.ac.uk

GrantsPostAward@ssc.rcuk.ac.uk
grants@headoffice.mrc.ac.uk
GrantsMRC@ssc.rcuk.ac.uk
Claire.Wyllie@headoffice.mrc.ac.uk
Rebecca.Hodges@headoffice.mrc.ac.uk
amt@headoffice.mrc.ac.uk


For more information on the Raising Awareness Campaign, see posts.


THANKS TO ALL WHO PARTICIPATE
from around the world!

María

María de la Torre
Founder and Executive Director

A Public Charity
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A EURORDIS and NORD Member Organization

3 comments:

Tiago Lopes said...

Sent it to all of the e-mail addresses.

To all TMAU suffers around the world - we'll make it. Stay Strong!

Jul 19, 2012, 5:28:00 PM
Baguio said...

Done. Please note that one of the email addresses is duplicated ;-)

Kind Regards,


Baguio

Jul 19, 2012, 8:09:00 PM
Maria de la T., Founder and Executive Director, MEBO Research said...

Thanks, Tiago and Baguio for your support. It is much appreciated. Together we can make things happen.

I removed the duplicate address posted in error. Thanks for pointing it out.

Jul 19, 2012, 8:15:00 PM
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