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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, September 18, 2012

Post-Traumatic Embitterment Disorder and workplace bullying


Post-Traumatic Embitterment Disorder and workplace bullying
July19 by David Yamada


Post-Traumatic Embitterment Disorder and workplace bullying is something too commonly seen in our community of sufferers of uncontrollable body or breath odor conditions. It is a paralyzing phenomena that seriously disrupts a sufferer's life and alters one's mental and emotional state, sometimes for years, and most frequently for life. Although PTED is not listed in the current version of the Diagnostic and Statistical Manual of Mental Disorders (DSM), it is a good "working tool" for sufferers and therapists to use in an effort to help alleviate psychological symptoms.

Is there a viable, positive way of coping with and handling workplace bullying to make it stop and to help maintain a positive self-image? How can we maintain a healthy perspective in the way we see ourselves in spite of bullying? Are we truly completely powerless? Can we find happiness living with this disorder?



Can some targets of severe workplace bullying become so angry and embittered by their experiences that they are unable to move forward in their lives?

In 2003, Dr. Michael Linden, a Berlin psychiatrist, proposed recognition of a new condition, Post-Traumatic Embitterment Disorder (PTED), asserting that a traumatic event could trigger “embitterment and feelings of injustice” that impair one’s “performance in daily activities and roles.” These reactions can be so strong and enduring that they render someone helpless to address the situation...

Thanks to Cheryl Fields (Dr. Stillstanding) for the "heads up" regarding this post.


María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
maria.delatorre@meboresearch.org
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