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DATE: 2 MAY 2017
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Tuesday, October 2, 2012

MEBO Research approved as an Organisation Member of EURORDIS


MEBO Research is proud to be a new Organisation Member of EURORDIS, The Voice of Rare Disease Patients in Europe. The Eurordis Board of Officers informed us that our application for associate membership was officially approved today, October 2nd, 2012. The following is a copy of the body of the acceptance letter received:

We are pleased to inform you that your application for associate membership of Eurordis was officially approved by the Board of Officers on October 2nd, 2012.

We would like to welcome you within Eurordis. We strongly believe that bringing together all patient associations will provide people with rare diseases with a strong and unique voice. With more than 500 direct member organisations, Eurordis is recognised and listened to as the European organisation specialised in the needs of patients with rare diseases.

As a member association, you will receive key information on a regular basis. We also encourage you to consult our website: www.eurordis.org and subscribe to our electronic newsletter directly on the site.

Please find attached the Eurordis member logo that you are invited to use on your communication material and website. We will send you by normal mail a welcome package.

Once again, we welcome you to Eurordis. Please do not hesitate to contact us if you need any further information.

Sincerely yours
------------

EURORDIS
Plateforme Maladies Rares
96, Rue Didot, 75014 Paris
France

It is an honor and a privilege to hold this membership, and we are most grateful to the Board for this great opportunity.


María

María de la Torre
Founder and Executive Director

A Public Charity
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A EURORDIS and NORD Member Organization

2 comments:

Anonymous said...

Congratulations you guys !!!

Oct 4, 2012, 1:50:00 PM
Brei said...

Hi I would like to know if I have tmau ppl say i smell all the time.. sulfur when I eat. I always have high blood pressure the doctors have to check me 2 or 3 times my breath smells fecal I'm am allergic the wheat and gluten also I have been told it's all in my head from 15 to now I'm 22

Feb 6, 2016, 8:36:00 PM
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