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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, November 8, 2012

Breath collection session for exploratory study returns to London and Nottingham

In a little over three weeks from today, the BCA 5.0 instrument provided by Menssana Research will again return to London and Nottingham England to collect more breath samples from body and breath malodor sufferers for the MEBO-Menssana Alveolar Breath Exploratory Study (scroll down to see all posts).

DATES IN LONDON:
  1. Saturday, December 1st, afternoon & evening
  2. Sunday, December 2nd, morning and if necessary, early afternoon.

DATES IN NOTTINGHAM:


Approximately one week prior to the London session, the instrument will be in Nottingham. MEBO UK's Assistant Executive Director is happy to make this opportunity available to any sufferer that wishes to give their breath sample. Please contact AJ at test@meboresearch.org to make arrangements for sample collection in Nottingham.


LOCATION IN LONDON:

The Guoman Tower Hotel
St. Katharine’s Way
London E1W 1LD
+44 845 305 8335



The breath collection session will be conducted by MEBO Research’s Assistant Executive Director, Adrian (AJ). He will have in his possession the BCA instrument in Nottingham a week prior to the London session, so anyone interested in providing a breath sample in Nottingham can make arrangements with AJ to do so by emailing him at aj.mcclay@meboresearch.org .

Anyone interested in participating in this program is welcome to fill out the Requisition below.


MEBO Research International
Aveolar Breath Study
Provided by the
Menssana Research Inc

£250/GBP or €275/EUR




IN BRITISH POUND STERLING




IN EUROS


María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization

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