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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
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at UK Findacure conf 2020

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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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BO Sufferers Podcasts

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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See RareConnect
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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Monday, December 24, 2012

Happy Holidays 2012

...the cause of body odor produced by alcohol consumption may be based on personal trigger(s), such as choline, sulfites sensitivities, glucose in fruity drinks, and/or the alcohol itself.....

HAPPY HOLIDAYS 2012

There have been a few posts written in this blog discussing better alternatives for consuming beverages and foods while vacationing and partying, something most tend to do on this holiday season. Here are some excerpts from these posts:

  • WHITE WINE, 4oz/120g contains 6.180mg of choline and 0.180mg of betaine per serving.
  • LIGHT BEER, 12oz/360g, contains 25.416mg of choline and 25.092mg of betaine per serving.
  • REGULAR BEER, 12oz/360g, contains 34.956mg of choline and 34.992mg of betain per serving.

The cause of body odor produced by alcohol consumption may be based on personal trigger(s), such as choline, sulfites sensitivities, glucose in fruity drinks, and/or the alcohol itself. Perhaps the ideal conditions would be for all sufferers to have access to more diagnostic testing in all these areas, but since we currently do not, it all boils down to an individual trial-and-error solution.

  1. Aldehyde dehydrogenase enzyme
  2. Increased gut permeability
  3. Choline- and betaine-defined diets for use in clinical research and for the management of trimethylaminuria
  4. Sulfites and Wine
  5. The ‘fruity drinks’ and gut fermentation

Other links:

María

María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization

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