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Blog Archive

Tuesday, January 8, 2013

Abuse, homelessness, and Judgement, living with (TMAU)

Visit Lisa's support group,
Support@TMAU.Spruz.com

testimonial of the inhumane treatment she has received by the very people who are supposed to be helping the homeless
Many in our community have gotten to know Lisa Marie, who shared her first video with us in September 2012, First hand experience with TMAU video, Lisa Marie. Lisa is the Founder of Silas Garrison Fisher, Inc., an organization dedicated to bringing about public awareness of rare medical disorders.

Lisa is one of the strongest human beings I have ever met, as she demonstrates her courage by sharing her second video, Abuse, homelessness, and Judgement, living with (TMAU) Trimethylaminuria. This heart-wrenching testimonial of the inhumane treatment she has received by the very people who are supposed to be helping the homeless, is nothing less than a cry (a scream) to tell the world that programs to raise awareness are essential to preserve the basic human right to dignity of persons who suffer from a medical condition!

In most homeless shelters in the United States, a person who seeks shelter is obligated to shower to not smell in order to be accepted. Even if a person claims to have done so, but still smells, and in Lisa's case, even as she explains that she has a medical condition, she was bullied and discriminated against, stripping away at her human dignity, as she describes in her video above.

a cry for sufferers to "come out of hiding," to be part of the solution!
Not only is this a call for all sufferers to stand up and participate in raising awareness campaigns around the world, but it is also a call for sufferers to support research to develop affordable treatment to control symptoms! If we wait for pharmaceutical companies to fund research for us, the cost of the therapeutic will be so high that it will be out of reach to sufferers, especially to those who are underemployed or unemployed.

This is a cry for sufferers to "come out of hiding," to be part of the solution!

Thank you Lisa for your courage to be a part of the solution.

María

María de la Torre
Founder and Executive Director

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