As advocates for research and treatment for Rare Diseases, our MEBO international community is very happy to hear the great news of a US Supreme Court Decision. This has revolutionized research propelling it forward to truly provide patients with faster results, by eliminating gene patents and announcing the launch of a public database for hereditary gene mutations!
INTERNATIONAL INITIATIVE APPLAUDS THE SUPREME COURT DECISION ELIMINATING GENE PATENTS AND ANNOUNCES THE LAUNCH OF A PUBLIC DATABASE FOR HEREDITARY GENE MUTATIONS
The Supreme Court's landmark ruling that human genes are not patentable has set the stage for a new era of access to genetic information.
posted by Mark in Genetic Alliance
With this landmark Supreme Court decision, we have an opportunity to pull together and take back our data – as patients, we have the power to change the way our information is shared. I am dedicated to help others free the data and pledge to share my information to help improve patient care and advance the treatment of these diseases that have affected my family for generations.”
Joanna Rudnick, advocate for patients with BRCA mutation
(risk for breast and ovarian cancer) and filmmaker
We know that this will be very well received news by the international research community. Great news!
María
María de la TorreFounder and Executive Director
A Public Charity
www.meboresearch.org
www.brasil.meboresearch.org
maria.delatorre@meboresearch.org
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