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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Monday, August 19, 2013

A Message from Cheryl Fields


Today, our MEBO Community Outreach Director, Cheryl Fields (Dr. Stillstanding), writes us the following inspirational message. Cheryl has been with our community long before MEBO was created as a Charity, and she has been a tremendous support for many sufferers, including me personally. I know I speak for may in our community when I give my heartfelt thank you to her.



Hello everyone.

We have a new season approaching, “fall”. But we will not “fall”, we shall rise and shine!

This year we (TMAUers) are going to start off with a NEW attitude.
Nothing NEGATIVE!
IT'S NOT WHAT HAPPENS TO YOU, IT'S HOW YOU RESPOND TO IT!

Yes, people are going to talk. Folks have been talking since the caveman/cavewoman days!
Stay POSITIVE, learn to shake off and ignore all the rude/cruel and nasty things people can say and do.
It is going to happen, but you do not have to be DEPRESSED or DOWN!

I am sick and tired of seeing you all hurting.
YOU do NOT have to HURT like that gang.
It hurts me when I get a telephone call & people are crying or wanting to inflict self-harm to themselves. :(

Today EVERYONE on this e-mail, the boards, the support groups, will all say together "I WILL NOT LET ANYONE HURT ME ANYMORE! IT STOPS TODAY!
TODAY I START TO LOVE & RESPECT ME! NO MORE BEING A PUSHOVER! NO MORE BEING USED! NO MORE BEING HURT BY FOOLS! TODAY

I TAKE A POSITIVE STAND!"

Come on gang! It starts TODAY!
Have a great week.
Dr. StillStanding (262)-764-0737---REPEAT YOUR NAME & SAY TMAU IS THE NATURE OF YOUR BUSINESS, or I cannot return your telephone call. You only need to call ONE (1) time per week, I travel a lot and I am not at this number on a constant basis. Thank you in advance for your understanding gang. In the mean time reach out to the support group members.
(Still Standing---Somehow?!) Smile!

*IF this does not PUMP YOU UP----you may need to call the funeral home?
NOTE: May post or pass this around to anyone you all feel may benefit.

Cheryl, Dr. Stillstanding


See additional posts by Cheryl Fields

featuring
Cheryl Fields, MEBO US Community Outreach Director,
Karen James, MEBO UK Public Relations Director, and
Glenna Gonzalez, MEBO US Public Relations Director.



María de la Torre
Founder and Executive Director

A Public Charity
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)




A EURORDIS and NORD Member Organization 

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