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Blog Archive

Tuesday, August 13, 2013

A Community United


Picture: Tres amigos,
by Ben Rimmer
On August 18, 2008, a post was published in this blog inviting sufferers to take part in the launching of our Raising Awareness Campaign. We united as an international community from many countries of the world to tell our first-hand accounts with the creation of our Anthology. We wrote essays, short stories, and poems. We also included quotes written by sufferers in forums with their consent.

This project forged a bond among the participants in our community. We embarked on this journey and we inspired each other as our respective "floodgates" were opened and the concealed was revealed. What a beautiful way to set in motion a campaign that blossomed and has continued to grow these past five years. This campaign has reached so many around the world, including national organizations, physicians, sufferers and their families.

Not everyone has been inspired to express themselves with the written word, some have drawn pictures and others sung songs in videos for the community to listen to. I would like to share with you a poem, which personifies how this project united our community. The first half of each verse was written by one sufferer, which inspired another sufferer to write the second half, and it then became the Mission Statement of this movement:

Mission Statement


Mission Statement
To gather the rejected into the fold engenders its cornerstone,
When the unloved is loved, a seed is planted and life begins,
When the undesirable feels desired, love's essence breaks through,
When beauty is tapped inside the uncomely, all beauty breaks loose,
To give joy to the sad cleanses the soul,
Companionship creates a refuge to blossom,
In comfort, mourning hastens by,
To seek and save the lost, a path is woven,
To bind the wounds of the hurting brings stillness and peace,
To heal the broken hearted morphs a new life,
To proclaim acceptance makes us one with the universe.

I hope that as a community, we maintain a high level of unity and enthusiasm to support and help each other through this experience and to work hard at making it possible for our children and grandchildren to lead happy lives.

María

A EURORDIS and NORD Member Organization

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