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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Saturday, September 6, 2014

2014 London MeetUp - Coincides with Thames Festival



DATE: Saturday & Sunday, 14th September 2014 to coincide with Thames Festival 2014
TIME: 1:00 - 5:00 pm (on the boat) and 5pm - 10pm (off the boat)
PLACE: Tattershall Castle
CONTACT: Arun 07725 912 027

Annual Group Meetup for people with Breath/ Body Odour: The Tattershall Castle on Sat 13th and Sunday 14th September 1-5pm (on the boat), then 5pm-10pm (off the boat)

This Meetup has been set up to coincide with the Thames Festival 2014
totallythames.org/events

On the Saturday and Sunday, we will meet 1pm onwards on the Upper deck (open air), of a boat called the Tattershall Castle, which is moored on the river Thames around 100 yards from Embankment Underground station:-
www.thetattershallcastle.co.uk/

However, if it rains or the weather is poor then we will sit in the lower deck. We will leave the boat at 5pm and in the evening, we will sit on the grassy areas on the South Bank of the river Thames beside the London Eye and listen to the live music and watch the firework display over the Thames. There are food stalls all around and we can sit on the grass and eat/drink.

Contact 07725 912 027.


There are cheap rooms at :-
www.londonuniversityrooms.co.uk/
Single rooms are only £45 per night because it is University of London Student's accommodation.


Tattershall Castle
Click on pic & scroll down

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