Join/Watch the weekly
TMAU UP Podcasts

MEBO Private Facebook Group
to join : contact
maria.delatorre@meboresearch.org

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

MEBO TMAU urine test

MEBO Research
TMAU Urine Test
United States only
PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

Click here for
REQUISITION FORM
Incomplete applications
will NOT be processed

SEE UPDATES HERE

1
test
$150 plus
shipping costs
2
tests
$250 plus
shipping costs

TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please.

Test analysis performed in batches of 20 or more

DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

Thursday, September 4, 2014

MEBO TMAU Test Program Results: BATCH #11

Click on icon

a  PATIENT ADVOCACY International campaign to research SYSTEMIC BODY ODOR AND HALITOSIS

A 501(c)3 Public Charity, USA
A Not For Profit LTD Company, England and Wales

The results of Batch #11 of the MEBO TMAU Test Program were received from the lab. In this batch, there were a few sufferers who decided to take advantage of the $100 plus round trip shipping rate offer for their second test. The benefit to doing a follow-up test is that one can better measure the effects of the TMAU odor-management protocol on TMA levels.

Living with an uncontrollable odor condition and getting a NORMAL TMAU test results can cause feelings of depression.  It is normal to feel overwhelmed when receiving a TMAU test results that indicates that a sufferer does not have any of the forms of TMAU, see Differential Diagnosis. It's difficult to know where to go from here because of the lack of knowledge about odor conditions in general. We yearn to define and explain it simply because we want to have control over it. Unfortunately, science is not there yet. So, what do we have to work with?

In this case, one should take some time out to be alone to process this news, and to strive to look at the big picture, as limited as it currently is. It seems that body odor and/or halitosis is produced, or greatly influenced by the following phenomena:
  1. The source of odorous chemicals (foods, gut microbes, pesticides and hormones fed to livestock or plants we eat, preservatives in foods, medicines, alcohol and other drugs, etc.),
  2. The degree of dysfunction of the metabolic enzymes responsible for the metabolism of each particular odorous chemical,
  3. The state of the organ(s) in charge of metabolizing these chemicals (the liver) and/or eliminating these chemicals from the body (cleansing organs, i.e., kidneys, skin),
  4. The environment, which produces odorous chemical, i.e., gut flora, the state of the digestive system, environmental damage to liver (i.e., hepatitis), kidney damage by environmental factors (i.e., infection, alcoholism & drug addiction), other medical conditions, etc.,
  5. Genetic mutations resulting in odor conditions.

Even though I believe in doing the TMAU test in an attempt to get some answers, I truly believe that the results either way are not the complete picture. In fact, many persons with a positive for TMAU test result cannot control their odor with the TMAU odor-management protocol (scroll down to read all posts). In my opinion, going on a low choline diet may only be scratching the surface of the problem-solution. I believe that we need to address the 5 questions above to truly get a better picture, and thus, to achieve greater control until researchers provide us with a more effective treatment, which hopefully will work not only for TMAU patients, but for other body odor conditions.

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.org
www.meboresearch.org
www.mebo.com.br/ (em português)
MEBO's Blog (English)
El Blog de MEBO (español)


SUPPORT THE MEBO MISSION: Click Amazon button at right sidebar of this blog when shopping online for the holidays
at no extra cost to you.
MEBO gets small commission from Amazon.


Please use your credit card to make your donation to MEBO.


Subscribe for latest posts : Enter your email address:

Delivered by FeedBurner

5 comments:

Anonymous said...

In my opinion, i really think that researchers already know,but they are just not telling, just to get more money out of these sufferers, and if that is the case, may god punish them all, but again, this is my honest opinion, i really believe something more can be done, and its a shame, because there are cures for these diseases and conditions out there, but everyone is turning a blind eye to it.

Sep 4, 2014, 3:42:00 PM
Anonymous said...

Some data is missing from this list compared to the last list. E.g. TMAO level 1007.52(#11 in last list), and TMA level 22.60 (#9 in last list) are missing. Or it may be the case that these levels belonged to the people who opted for the re-test, and their levels have decreased now, so the older values are deleted from the list.

If that is the case I would like to know what are new levels of those patients with earlier TMA level 22.60 and TMAO level 1007.52, after following the odor management protocol. Please tell me about the other cases also who opted for the re-test.

Sep 5, 2014, 4:01:00 AM
Maria de la T., Founder and Executive Director, MEBO Research said...

You are absolutely correct, anonymous, and thanks for pointing it out to me. It seems that I inadvertently updated the list of Batches 1 thru 9, instead of the list of Batches 1 thru 10. I will correct this over the weekend and put up the new chart that includes Batches 10 & 11. Sorry about that.

Sep 5, 2014, 7:19:00 PM
Anonymous said...

Will you please let me know Maria the old and new TMA and TMAO levels of all the patients who opted for the re-test; and after how long gap they took the re-test. I hope that all of them were following the recommended odor management protocol.

Sep 6, 2014, 2:12:00 AM
Maria de la T., Founder and Executive Director, MEBO Research said...

The gap between the first tests and the follow-up tests usually is many months to over a year and in some cases more than a year. I'm sorry, but I can't discuss further details without compromising the confidentiality of the participants.

Some first time testers also tell me that they have been on the TMAU odor-management protocol and want to see if their TMA levels are within normal range to determine whether they smell or not. Unfortunately, there was no baseline test results taken before they started the protocol, but at least the test results were normal, indicating that they did not suffer from TMA odor.

This is not to say that they are currently odor free, but it is to say that TMA is the the odorous chemical they are emitting.

Sep 6, 2014, 4:01:00 AM
Post a Comment