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MEBO Research
TMAU Urine Test
United States only
PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

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1
test
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TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please.

Test analysis performed in batches of 20 or more

DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
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Blog Archive

Saturday, February 14, 2015

Tracy's story on life with TMAU on the Rare Disease Day website

Tracy has bravely written her story about life with TMAU on the Rare Disease Day website. This helps us all in raising awareness of TMAU to the general public. Thank you Tracey.

Click to read Tracy's TMAU story 

A quote from Tracy's article :

" I beg the medical community as a whole do not allow this lack of awareness, support or advances to continue – nobody deserves this torturous segregation. I have spent my life in hiding not wanting to inflict my hell on anyone else. I apologise for the lack of any positivity but doctors, counsellors, everybody needs to understand how really bad it is because just saying you smell doesn’t seem to cut it. I want to smile a lot more, laugh a billion times more and just be able to say I am happy. There’s nothing else to do but be here and I don’t want to simply remain this way. "

You can read Tracy's full TMAU article on the Rare Disease Day website :  click here

Rare Disease Day is 28th Feb
You can write your own article on living with TMAU on the Rare Disease Day website : Tell your story

6 comments:

Anonymous said...

She is telling it like it is.

Feb 16, 2015, 4:24:00 AM
Anonymous said...

She is telling it like it is.

Feb 16, 2015, 4:25:00 AM
Anonymous said...

THERE ARE SO MANY PEOPLE WHO WANTS TO END THEIR LIVES BECAUSE OF THIS CONDITION, AND YET THE MEDICAL COMMUNITY IS STILL NOT LISTENING OR HEARING THESE PEOPLE'S CRYS, ITS JUST SAD.

Feb 19, 2015, 10:38:00 AM
rurichek said...

I like the essay. It says everything that I feel. I can't add anything more.

Feb 19, 2015, 10:15:00 PM
Anonymous said...

Le agregaría que somos tratados como si fuéramos delincuentes

Mar 5, 2015, 8:19:00 PM
Anonymous said...

Hola a todos. Este es sólo uno de tantos miles de personas que sufrimos esta desagradable condicíón y tenemos que sufrir a diario desprecios, burlas, asco, y muchas cosas más. Cuántas personas como Tracy estamos pidiendo a gritos alguna medicina o tratamiento. Por favor, no somos pocos, habemos mas gente en el anonimato sin saber que hacer sufriendo y pensando a diario que quitandonos la vida solucionamos tanto dolor sicológico... Gracias, necesitamos ayuda.

Mar 9, 2015, 8:06:00 PM
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