MEBO Private Facebook Group
to join : contact
maria.delatorre@meboresearch.org

MEBO TMAU urine test

MEBO Research
TMAU Urine Test
United States only
PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

Click here for
REQUISITION FORM
Incomplete applications
will NOT be processed

SEE UPDATES HERE

1
test
$150 plus
shipping costs
2
tests
$250 plus
shipping costs

TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please.

Test analysis performed in batches of 20 or more

DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

MEBO meetup map


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org
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RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

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Blog Archive

Friday, March 20, 2015

A message from NORD

Thanks to Tracy stepping up and telling her story for RareDisease Day 2015, Trimethylaminuria was represented in this event. We thank you, Tracy, for your contribution to our cause.

“More than 160 people submitted photos & stories to the Handprints Across America™ gallery. By working with Rare Disease Day founder, EURORDIS, our efforts helped to make this a truly global event with hundreds of patient organizations & thousands of events on every continent. Several new countries, including Bolivia, Estonia and Madagascar, participated in Rare Disease Day for the first time.”


Rare Disease Day 2015 Highlight Video
Rare Disease Day 2015 Highlight Video
Rare Disease Day 2015 was our biggest and most impactful yet!
The final 2015 State House Event took place yesterday.  Now that all of the numbers are in, take a look at (and share!) this year's highlight reel & recap:
  • ​Together, we planned and hosted 32 State House Events in capitol buildings across the U.S., up from last year's 12 State House Events
  • Governors in 36 states issued proclamations for "Rare Disease Day"
  • The Senate passed a resolution declaring Feb. 28, 2015 "Rare Disease Day"
  • Nearly 1,500 people and 189 state legislators & staff attended the State House Events, which featured participation from 83 organizations85 patient & caregiver speakers35 state legislative speakers, and 39 medical professional & industry speakers
  • More than 800 partners joined the movement by signing on to the U.S. Rare Disease Day website & combined forces with advocates in 80+ countriesaround the world
  • Rare Disease Day trended on Facebook for the first time
  • More than 160 people submitted photos & stories to the Handprints Across America gallery
  • Millions of people around the world watched this year's video
  • By working with Rare Disease Day founder, EURORDIS, our efforts helped to make this a truly global event with hundreds of patient organizations &thousands of events on every continent. Several new countries, including Bolivia, Estonia and Madagascar, participated in Rare Disease Day for the first time
With all of our efforts, Rare Disease Day continues to grow! Thank you to everyone who planned and attended events, joined the social media campaign, changed their profile photos, shared infographics, and got involved.
As the official U.S. sponsor of Rare Disease Day, NORD thanks everyone who came together to support this truly community and group effort.  Together, we are strong!
Keep the Momentum Going
You can help keep the positive Rare Disease Day momentum going by urging your representatives to support the Ensuring Access to Clinical Trials Act.  This bipartisan legislation would help more people with rare diseases participate in clinical trials without fear of losing important benefits or health coverage. Learn more & take action as easily as entering your zip code.
Looking Ahead: Rare Disease Day 2016
Planning is already underway!  So far, 27 states have committed to hosting State House Events.  Join us and get involved - send us an email and visit thewebsite in the coming months. 
Rare Disease Day 2016 will take place on Feb. 29, 2016, the rarest of all calendar days.

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