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Tuesday, October 20, 2015

Possible hospital-led TMAU support group in Dublin

It looks like Dr Eileen Treacy may be setting up a TMAU support group in Ireland, based at the Dublin Hospital she works at. Dr Treacy has a long history of being interested in TMAU.

A forum poster posted about this potential support group in Dublin on the TMAU.org.uk forum today
Forum post about Dublin TMAU support group

This would be the first known TMAU support group arranged by healthcare workers and would be a much welcome thing at all hospitals (as few as there are) who help TMAU patients.    

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3 comments:

Anonymous said...

The Queen Elizabeth Hospital in Birmingham (UK) has an Inherited Metabolic Disorders department that sees TMAU patients, and when I went to my last appointment a month or so ago, the consultant said that a psychologist would be joining them in the new year and s/he would start a support group that I could then attend.

If anyone lives near Birmingham, it's worth asking your G.P to refer you if you have TMAU as they do the urine tests, and while there is nothing they can do, other than give the general advice that is out in the public domain, they can check in with you periodically and I guess it raises the profile that there are more people. There is also a specialist nurse, pharmacist and dietician as part of the consultation appointments, so worth going for sure if you have TMAU and can get a G.P to refer you.

Oct 20, 2015, 2:59:00 PM
Maria de la T., Founder and Executive Director, MEBO Research said...

Thank you very much for this information. Is it alright if I write a post about this, so that others might find this information more quickly?

Oct 20, 2015, 3:30:00 PM
Anonymous said...

Hi Maria,

Yes of course, please do. The consultant Endocrinologist at the Queen Elizabeth is Dr Tarekegn Hiwot in the Inherited Metabolic Disorders Outpatients Clinic, Queen Elizabeth Hospital, Birmingham, B15 2WB.

It would be useful if people who have the condition are referred if eligible by location as it will raise the profile and legitimise how people are feeling, as well as allow testing. Urine tests are sent to the Sheffield Hospital by the Queen Elizabeth.

Regards

Oct 24, 2015, 3:43:00 PM
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