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to join : contact
maria.delatorre@meboresearch.org

MEBO Map Testing & Meetups


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MEBO TMAU urine test

MEBO Research
TMAU Urine Test
United States only
PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

Click here for
REQUISITION FORM
Incomplete applications
will NOT be processed

SEE UPDATES HERE

1
test
$150 plus
shipping costs
2
tests
$250 plus
shipping costs

TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please.

Test analysis performed in batches of 20 or more

DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

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Friday, November 11, 2016

UK Sheffield TMAU urine test service UPDATE

Karen, MEBO PR Director, has posted this on the rareconnect TMAU forum regarding the current suspension of the Sheffield Children's Hospital TMAU phenotype/urine test service.

1. Referrals and consultations should still be going ahead as normal
2. The urine samples can still be collected and stored, either by the GP or the consultant.
3. Patients can still request genetic testing - this is unaffected.
4. Request that your sample be sent to the lab in the Netherlands by the NHS practitioner.
5. Ask the GP for your entitlement to at least 6 sessions of counselling to deal with the added stress of not having your sample tested!


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A EURORDIS and NORD Member Organization

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