Join/Watch the weekly
TMAU UP Podcasts

MEBO Private Facebook Group
to join : contact
maria.delatorre@meboresearch.org

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

MEBO TMAU urine test

MEBO Research
TMAU Urine Test
United States only
PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

Click here for
REQUISITION FORM
Incomplete applications
will NOT be processed

SEE UPDATES HERE

1
test
$150 plus
shipping costs
2
tests
$250 plus
shipping costs

TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please.

Test analysis performed in batches of 20 or more

DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

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Blog Archive

Tuesday, January 31, 2017

Support the MEBO Mission : RESEARCH


SUPPORT MEBO's MISSION

RESEARCH

ON RARE DISEASE DAY

You can be involved without leaving your home!

As a registered not-for-Profit company in England and Wales since 2009, and a registered Public Charity in the United States since 2010, MEBO has done its best to raise awareness by being a participant, one way or another, in most of the government and private entities that have published information of TMAU, such as,

1. Organization Member of NORD, National Organization of Rare Disorders in the United States

2. MEBO Research UK is an Organization Member of EURORDIS, The Voice of Rare Disease Patients in Europe http://www.eurordis.org/about-eurordis

3. RARE CONNECT: Eurordis is an "Initiative Connecting Rare Disease Patients Globally". All sufferers around the world are welcome to join Trimethylaminuria Community of RareConnect. Some moderators of this site are MEBO Directors.

4. ORPHANET : MEBO Research, UK

Orphanet has a link to the UK Medical Research Council funded (£358,000 GBP, equivalent to 422K/Euros or 552K/USD) research project performed by Dr. Elizabeth Shephard for a "Therapy for the body and Breath malodour disorder Trimethylaminuria (TMAU).

5. GENETIC ALLIANCE MEBO Research UK

If MEBO directors in the US and the UK have been able to accomplish all this and more in only 8 years, imagine how much we could accomplish if more sufferers participated on the Rare Disease Day projects and events.
In addition to providing sufferers with the opportunity to do the MEBO TMAU Urine Test, MEBO has also supported research projects, such as the pre-clinical drug development for TMAU performed by Dr. Elizabeth Shephard as indicated in the Research Councils UK website, noting that, "Patient group MEBO [will have access] to the benefits of this research. (Click on the "Outcome" tab).

As promised in the MEBO Mission Statement, MEBO is not only focused on TMAU research and treatment, but is also very committed to the pursuit of research to identify other forms of odor conditions. Therefore, the MEBO Metabolomic Profiling Pilot Study was launched in Edmonton, Canada with Dr. David Wishart (PhD Yale, 1991) at the Wishart Lab, University of Alberta. It is a registered research project with the ClinicalTrials.gov, Trial NCT02683876. (See updates.)

Click to see Info Pack
If MEBO directors in the US and the UK have been able to accomplish all this and more in only 8 years, imagine how much we could accomplish if more sufferers participated on the Rare Disease Day projects and events. Please refer to the,

Rare Disease Day
Patient Involvement : Research
28 February 2017.

María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)

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