MEBO Private Facebook Group
to join : contact
maria.delatorre@meboresearch.org

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

MEBO TMAU urine test

MEBO Research
TMAU Urine Test
United States only
PROGRAM IS PERMANENTLY SUSPENDED AS OF 2 MAY 2017

Click here for
REQUISITION FORM
Incomplete applications
will NOT be processed

SEE UPDATES HERE

1
test
$150 plus
shipping costs
2
tests
$250 plus
shipping costs

TWO PAYMENT PLAN OPTION
Send email to maria.delatorre@meboresearch.org to arrange, AFTER filling out Requisition Form, please.

Test analysis performed in batches of 20 or more

DATE: 2 MAY 2017
Currently on : PROGRAM IS TEMPORARILY SUSPENDED

Samples analyzed since June 2012 :
352
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

Your currency will be automatically converted to USD or GBP by PayPal.

Option: pay with your credit card instead of PayPal account by clicking on either Donate button above.

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed

Subscribe to Blog

Enter your email address:

Delivered by FeedBurner

You will be sent a verification email

Subscribe in a reader

Blog Archive

Friday, February 24, 2017

Adult TMAU Referrals : Evelina Hospital London

Adult TMAU referrals.
London.
Adult Metabolism Unit.
Evelina Children's Hospital, inside St Thomas Hospital.
Accept GP and local consultant referrals.
Similar service to Charles Dent London service.
Referrals : England (current info).
Added to MEBO Map (see sidebar).
Email : gst-tr.ELCHAdultMetabolicReferrals@nhs.net
Website : Evelina Adult TMAU refer

Mebo has become aware that another ADULT METABOLISM UNIT in LONDON has said it accepts ADULT referrals for TMAU. This would be similar to the Charles Dent Unit run by Dr Lachmann in North London.

How to get referred : 
You would need a GP or Local Consultant referral. There is a chance it may be for South London only (to be confirmed).
Full details can be seen on their website.
The current email on their website does not work (Feb 2017).

Contact details :
Adult Metabolism Unit
referral details :

Dr Yusof Rahman/Dr Radha Ramachandram, Consultants in Inherited Metabolic Disease
Department of Inherited Metabolic Disease
Evelina London Children's Hospital
3rd Floor, Becket House
Lambeth Palace Road
London SE1 7EU

The adult metabolic public e-mail address for GP referrals is:
gst-tr.ELCHAdultMetabolicReferrals@nhs.net

phone :
020 7188 4004

website
Adult TMAU referrals : Evelina Hospital London


Why go to an Adult Metabolism Unit ?
They have likely heard of TMAU and know the basics of TMAU.
Will likely order urine test easily. Then DNA test if positive for urine test.
Some sympathy.
They may have TMAU group sessions (a new trend).
Diet advice from the Diet Team.
Official diagnosis etc.

Adult Metabolism Units :
These seem to be a new trend in the UK, perhaps due to the single structure of the UK Health Service (NHS, top-down orders). At the moment it is likely the TMAU person will know everything told already, but the service for TMAU is in it's early years.
In other countries, perhaps you can look around to see if there are Adult Metabolism Units in your region.  

NHS Law/Contract circa 2014
Perhaps this NHS contract/law paper from circa 2013 has helped with the new clarity of Adult Inherited Disorder units purpose in the UK. Trimethylaminuria is included in the list.
E06/S/a : 2013/14 NHS STANDARD CONTRACT FOR METABOLIC DISORDERS (ADULT)
NHS : E06 : Metabolic disorders : Scope

MEBO Map
The MEBO Map (in the sidebar) is intended as a map of TMAU 'places', mainly places of help. Most of the locations are UK. The Heidelberg TMAU test is thought to be quite accurate. Also Denver TMAU test.
Better/new information for the map is always welcome.

Correction to this post are welcome.
If anyone has been to Evelina for TMAU, you can comment about it if you want.

get New Posts by EMAIL : Enter your email address :



A EURORDIS and NORD Member Organization

0 comments:

Post a Comment