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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, February 23, 2017

Kelly TMAU story goes viral media/internet

Thanks to Kelly who has done a TMAU media piece for Barcroft TV on youtube which has gone viral, including in the Daily Mail (world's most read new site). She also appeared on 'ITV This Morning' show the day after. Many world news sites also picked up the story.

Some stats after 2 days since the video upload to Barcroft :

Daily Mail stats : (article here)
10k shares.
2nd most read story in Health section over 7 days.
5th most read story in Health section over 30 days.
341 comments.

Other stats :
Barcroft YouTube channel :  254k views
ITV youtube views (1 day) : 19k views





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A EURORDIS and NORD Member Organization

3 comments:

Anonymous said...

Itv this morning interview is under the search of 'body odour' so hopefully more people looking into body odour problems will come across this video very easily.

Feb 26, 2017, 11:10:00 PM
blogcontributor2 said...

the ITV video seems to have gone viral too. 103K views in about 4 days and counting. They have 4000+ videos and it's already most popular #196 and going up in their channel. This could want more tmau guests in future.

Feb 27, 2017, 2:57:00 AM
Anonymous said...

Very exciting.

Feb 27, 2017, 4:37:00 PM
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