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MEBO - UBIOME study 2018

NCT03582826
ClinicalTrials.gov
MEBO Gut Microbiome Study
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU stories

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

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Saturday, April 22, 2017

rareconnect TMAU Webinar : Dr Yiran Guo




TMAU Webinar. 3 April 2017.
Dr Yiran Guo.
Geneticist, Children's Hosp Philadelphia (CHOP).

About :
The community funded TMAU study involving 10 TMAU1 volunteers. DNA testing them for FMO3 and whole EXOME sequencing to look for other possible problem genes.

Conclusion :
TMAU may not be only caused by FMO3 faults.

Points of interest :
Dr Guo involved with a 'CHOP' rare-disorder DNA research project that includes TMAU (RD1000, no website).
Wants another 100 samples to learn more from the TMAU research. Probably using whole exome sequencing.

link to paper : impaired TMA and WES (paper 2017)

Webinar platform and hosting (Marta) provided by rareconnect.org

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A EURORDIS and NORD Member Organization

4 comments:

Anonymous said...

WHY HAVEN'T WE HEARD ANYTHING BACK FROM PROCTOR AND GAMBLE ABOUT THE TMAU STUDY THAT THEY ARE WORKING ON WITH THE DMB PILL, I MEAN, THEY'VE BEEN WORKING ON THIS FOR QUITE SOME TIME NOW, AND NOTHING HAS BEEN TALKED ABOUT AS OF YET, I MEAN, SUFFERERS HAS THE RIGHT TO KNOW WHAT THEY HAVE FOUND OR DISCOVERED SO FAR, AND THEY ARE JUST KEEPING EVERYONE IN THE DARK ABOUT THE RESEARCH,AND EVERY SUFFERER THAT I'VE BEEN IN CONTACT WITH ARE GETTING FRUSTRATED BECAUSE OF IT.

Apr 24, 2017, 3:07:00 PM
Anonymous said...

You do know that research you're referring to is for the heart disease patients and yes it may help the tmau sufferers but technically speaking they don't need to update the tmau sufferers because they don't owe it to us. But, if you're referring to the UK tmau research project then you're right we should be more updated that way maybe we could help out with finding grants or something.

Apr 24, 2017, 8:19:00 PM
Anonymous said...

I was told scientists are working on a TMA blocker pill. Would this be similar to statins? That block production of cholesterol in the liver? So this would block TMA production in the intestines I guess. The drug company that invents this pill first is going to be damn rich so plz get going!!!!!

Apr 27, 2017, 2:56:00 PM
Anonymous said...

If you type tmao on Google search and click on news tab there's new updates on choline.

Apr 28, 2017, 3:10:00 PM
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