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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
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MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

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BO Sufferers Podcasts

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TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
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rareconnect.org TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Thursday, August 3, 2017

Food Lists for Fecal Body Odor Sufferers


We are very grateful to Danny Kunz for these 4 Food Lists to help fecal body odor sufferers better understand what proteins, organic compounds and sugars are in certain foods. To better understand what these compounds are, you can do a simple Wikipedia search on Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid, and sugar. See notes below the quoted text for additional information and references about these compounds.

If any sufferer has done any tests in which these compounds are measured and compared to normal levels, and if any of them are elevated, perhaps it might be best to consider modifying the diet to bring them into their normal levels taking into account the information in the 4 food lists provided by Danny.
By Danny and his team researching our community of systemic body odor sufferers, they help us better understand what role these compounds have, if any, in contributing to fecal body odor, including bromhidrosis, based on our genetic composition and/or metabolism. Some of these organic compounds are recommended and others are non-essentials. If any sufferer has done any tests in which these compounds are measured and compared to normal levels, and if any of them are elevated, perhaps it might be best to consider modifying the diet to bring them into their normal levels taking into account the information in the 4 food lists provided by Danny.

Danny and his team are currently carrying out a pilot study involving testing DNA sequencing of Systemic Body Odor Diseases. In addition, Danny Kunz did the PowerPoint Presentation,
"Metabolic Pathway Simulation: Apocrine Bromhidrosis compared to TMAU" for the MEBO 2017 Annual Meetup.

Danny tells us,

...I've attached a food list for fecal body odor sufferers.

We calculated some general food lists, which spans the fecal body odor patients and Bromhidrosis patients.


Levels:HIGH of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels

Levels:LOW of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels

Levels:VERY_HIGH of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels

Levels:VERY_LOW of Tryptophan, Tyrosine, Phenylalanine, Histidine, Alcohol, Acetic acid and sugar levels



Tryptophan "is an α-amino acid that is used in the biosynthesis of proteins. It contains an α-amino group, an α-carboxylic acid group, and a side chain indole, classifying it as a non-polar, aromatic amino acid. It is essential in humans, meaning the body cannot synthesize it and thus it must be obtained from the diet. Tryptophan is also a precursor to the neurotransmitter serotonin and the hormone melatonin...For many organisms (including humans), tryptophan is needed to prevent illness or death, but cannot be synthesized by the organism and must be ingested; in short, it is an essential amino acid (Wikipedia)."

Tyrosine is one of the 20 standard amino acids that are used by cells to synthesize proteins...and a non-essential amino acid...(see Functions and dietary requirements in Wikipedia)

Phenylalanine is a precursor of Tyrosine...is an α-amino acid. Phenylalanine is found naturally in the breast milk of mammals. It is used in the manufacture of food and drink products and sold as a nutritional supplement for its reputed analgesic and antidepressant effects. (see dietary sources in Wikipedia)

Histidine is an α-amino acid that is used in the biosynthesis of proteins...The histidine amino acid is a precursor for histamine, an amine produced in the body necessary for inflammation...The Food and Nutrition Board (FNB) of the U.S. Institute of Medicine set Recommended Dietary Allowances (RDAs) for essential amino acids in 2002. For histadine, for adults 19 years and older, 14 mg/kg body weight/day. (See Requirements references in Wikipedia)

Alcohol : Ethanol occurs naturally as a byproduct of the metabolic process of yeast. As such, ethanol will be present in any yeast habitat. Ethanol can commonly be found in overripe fruit. Methanol is produced naturally in the anaerobic metabolism of many varieties of bacteria, and is commonly present in small amounts in the environment.

In chemistry, an alcohol is any organic compound in which the hydroxyl functional group (–OH) is bound to a saturated carbon atom... an alcohol is often called with the name of the corresponding alkyl group followed by the word "alcohol", e.g., methyl alcohol, ethyl alcohol. Propyl alcohol...Alcohols are then classified into primary, secondary (sec-, s-), and tertiary (tert-, t-), based upon the number of carbon atoms connected to the carbon atom that bears the hydroxyl functional group... (Wikipedia)

Sugar is the generic name for sweet, soluble carbohydrates, many of which are used in food...


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