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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

Upcoming get-togethers


Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Saturday, March 17, 2018

Be a Participant in MEBO Research Study



ATTENTION SUFFERERS FROM AROUND THE WORLD!
Would you like to participate
in a MEBO Research Study?

Through these past 10 years of MEBO’s existence, it has always been and will always be our top priority to honor the U.S. HIPPA LAW and any other similar government law of any country, which calls for the complete privacy of personal identifying data.
MEBO’s Scientific Director, Irene Gabashvili, PhD., is the Principal Investigator of MEBO’s three (3) Clinical Trials. As noted in this post in the MEBO Blog, she is currently working on the ongoing study, ‘Microbes of anti-social odor’, and she’s asking all sufferers for help.

If you ever wanted to support or participate in research of any types of breath/body odor conditions and/or PATM, but were frustrated because no research funding is available to allow research to come to fruition, please note that this is your opportunity. All three MEBO clinical trials were funded by participants/sufferers who paid for their tests and donated their results to MEBO, since MEBO has no research funding available. Irene then volunteered her time and work to analyzing all the data and arriving at preliminary findings. Then she shares them with us in the MEBO Blog (scroll down to see all posts), without ever disclosing personal information. Some of the very interesting findings she has arrived at are posted in the following posts in her Aurametrix Blog (scroll down to see all posts).

Irene will then continue to post to the community the preliminary and ongoing reports of the study, as she obtains more and more data from sufferers, until a pretty solid picture begins to emerge. This has been the MEBO way through the years, and we hope to be able to continue doing so for years to come.
Irene will then continue to post to the community the preliminary and ongoing reports of the study, as she obtains more and more data from sufferers, until a pretty solid picture begins to emerge.Through these past 10 years of MEBO’s existence, it has always been and will always be our top priority to honor the U.S. HIPPA LAW and any other similar government law of any country, which calls for the complete privacy of personal identifying data. Of course, much more research is needed to support or clarify these preliminary findings, and this is you opportunity to help!

In order to best help you understand these results in relation to your odor condition, you would need to send the results to me to maria.delatorre@meboresearch.org, so that I can de-identify them, and then I'll send them to Irene using DropBox, a more secure way of sending files.  She will then include you data in her study. Otherwise, you can email your results to Irene directly at irene.gabashvili@meboresearch.org
To help, you can click on the “uBiome Gut: 10% OFF” button/icon on the upper right side of this blog and purchase your own gut microbiome test. You will receive your results directly from uBiome. In order to best help you understand these results in relation to your odor condition, you would need to send the results to me to maria.delatorre@meboresearch.org, so that I can de-identify them, and then I'll send them to Irene using DropBox, a more secure way of sending files.  She will then include you data in her study. Otherwise, you can email your results to Irene directly at irene.gabashvili@meboresearch.org. Irene will then continue to post to the community the preliminary and ongoing reports of the study, as she obtains more and more data from sufferers, until a pretty solid picture begins to emerge. This has been the MEBO way through the years, and we hope to be able to continue doing so for years to come.

As this study progresses, Irene will then have the necessary information to recommend the proper protocol for each type of condition. This will help you find a way to control your odor symptoms. It’s a win-win situation.

If you prefer to send me your results by mail, the MEBO address is:

Maria de la Torre
MEBO Research, Inc.,
13220 SW 35 Ter
Miami, Fl 33175


María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
www.mebo.com.br/
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)



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A EURORDIS and NORD Member Organization

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