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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Sunday, October 21, 2018

Crissan's Mental Health Column: Starting and Maintaining Meaningful Relationships

Starting and maintaining
meaningful Relationships




OCTOBER 2018

MEBO Mental Health Monthly Column
MEBO Mental Health Director


RELATIONSHIPS
Starting and Maintaining
Meaningful Relationships

In her July, August and September posts, Crissan offers us an indepth discussion on Anxiety management. Now in her October Mental Health Column post, she shares her insightful perspective and professional views on how sufferers can enrich their lives with meaningful relationships. She points out that there are many potential sources of fulfilling relationships that we can tap into. Now in her November Mental Health Column post, she focuses our attention on stress management, the effects it has on the body and mind, and techniques for stress management.

Thus there are several types of relationships. A positive relationship is based on balance, support, mutual understanding, respect, honesty and openness...Many malodor sufferers lead very isolated lives due to the devastating and socially-impairing symptoms.

Crissan's indepth article covers the following topics from the perspective of a sufferer and Mental Health Professional:

  1. What are the consequences of not having positive and meaningful relationships?
  2. Isolation
  3. The hormone of love and connection
  4. Different types of relationships
  5. How can you meet and maintain friendships?
  6. To tell or not to tell about malodor conditions?
  7. Benefits of having friends when you have a malodor condition
  8. Dating with a malodor condition
  9. Online dating and online relationships
  10. Dealing with long term romantic relationships and marriage
  11. Raising children
  12. Harmful relationships
  13. Other ways to form meaningful connections,

and many more topics of significance for persons suffering from uncontrollable malodor conditions.


Our most sincere gratitude goes out to Crissan, our MEBO Mental Health Director, for her ongoing dedication to our community. She gives her heart and soul to lift up our community so that each has the wherewithal to find happiness and peace in life. Thank you, Crissan!




María

María de la Torre
Founder and Executive Director

A Public Charity
maria.delatorre@meboresearch.com
www.meboresearch.org
MEBO's Blog (English)
El Blog de MEBO (español)
MEBO Brasil - Blog (Portuguese)


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A EURORDIS and NORD Member Organization

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