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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER
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BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Monday, July 29, 2019

UK Gov Malodour Petition : Ends 23Jan20

Petitions are an obvious way to show support and try to influence decision-makers.
A new UK Petition was started recently.

UK Petition to the Gov. 
ENDS : 23 January 2020 
We are requesting funding towards a new research project for human metabolic malodour conditions. These conditions such as : Trimethylaminuria, Extoral halitosis, PATM, Candida which are all becoming more prevelant within the UK populations with as much as 500 people requesting testing per year.
Theae conditions leave people smelling of awful odours on a consistent basis, which can worsen due to dietary intakes, stress, cardiovascular exercise and is extreamly diffcuilt to control. This is not a matter of hygiene,currently there is no effective treatment for any of the conditions listed above, which leaves sufferers suffering from mental health issues.The diagosis protocol is very difficult to acquire due to the lack of education via GP practices.We are requesting for additional funding.
So far 27 have signed.
Last UK Gov TMAU petition reached 262 

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A EURORDIS and NORD Member Organization

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