tag:blogger.com,1999:blog-3652036210877702504.post2503054955138561003..comments2024-03-26T08:33:06.926-04:00Comments on The MEBO Blog: Wevers : New gene suspect for METABOLIC MALODOR : SELENBP1Unknownnoreply@blogger.comBlogger24125tag:blogger.com,1999:blog-3652036210877702504.post-76406877978942530402018-01-08T06:51:39.955-05:002018-01-08T06:51:39.955-05:00selenbp1 gene test
im guessing they may do this ...selenbp1 gene test <br /><br />im guessing they may do this too, but might use blood.<br />23andme have a few codons listed, but cant work out if they are relevant or not. i think no.blogcontributor2https://www.blogger.com/profile/03633940291854607039noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-8057090595904625802018-01-08T06:50:12.235-05:002018-01-08T06:50:12.235-05:00 dimethylsulfoxide urine test?
it seems thats wha... dimethylsulfoxide urine test?<br /><br />it seems thats what they are using, but i might be wrongblogcontributor2https://www.blogger.com/profile/03633940291854607039noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-62270246798694319162018-01-08T06:26:44.116-05:002018-01-08T06:26:44.116-05:00Most of us would prefer a gene test and not a urin...Most of us would prefer a gene test and not a urine test, because if we are not experiencing the odor at the time it might not show up in a urine test. We might be asymptomatic at the time of a urine test. A selenbp1 gene test would let us know regardless of whether we are symptomatic or not. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-70867170598985565062018-01-08T05:51:57.957-05:002018-01-08T05:51:57.957-05:00Not sure, but from the article, could diagnosis be...Not sure, but from the article, could diagnosis be as easy as a dimethylsulfoxide urine test?Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-89425910215968306982018-01-08T02:47:08.513-05:002018-01-08T02:47:08.513-05:00I'm guessing Wevers lab will do the test (soon...I'm guessing Wevers lab will do the test (soon ?).<br />He has a public email which is listed on his webpage (link is in post).<br />blogcontributor2https://www.blogger.com/profile/03633940291854607039noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-64930450505455162492018-01-07T23:09:15.280-05:002018-01-07T23:09:15.280-05:00I agree with annoymous's comment from Jan 7th....I agree with annoymous's comment from Jan 7th.<br /><br />It would be great if we can get least get diagnosed to see if it's selenbp1.<br /><br />I believe TMAU only plays a tiny part if any at all in most of us.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-14083762219375648052018-01-07T21:44:18.456-05:002018-01-07T21:44:18.456-05:00Felicidades por su investigación es importante sab...Felicidades por su investigación es importante saber que problema genético puede provocar mal olor y así poder buscar una cura o tratamientoAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-25223966931354822402018-01-07T21:36:55.465-05:002018-01-07T21:36:55.465-05:00Que dieta hay que seguir?en caso de tener este tra...Que dieta hay que seguir?en caso de tener este trastorno metabólico o genético Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-10940677741535347562018-01-07T10:16:16.780-05:002018-01-07T10:16:16.780-05:00Sorry to sound negative, but there seems to be too...Sorry to sound negative, but there seems to be too much lethargy and inaction in the tmau and fbo community. I know that every sufferer who has fbo but who has tested negative for tmau is asking "hw can i get tested for selenbp1 mutation?" We are not interested in meaningless chit chat on this board, but action. Can MEBO at least look into partneri g with a lab for such a test, or willAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-38201214383683656692017-12-24T16:06:39.039-05:002017-12-24T16:06:39.039-05:00Richard here: When I was chopping up my post to me...Richard here: When I was chopping up my post to meet the restrictions, I think I inadvertently omitted the last paragraph of Part Two, so if I did omit it, Maria, could you insert it for me?:<br /><br />Yes, Linda PRESUMED my mother would be addressing me in English. And yes, my mother's 'fressing' was not EXACTLY the German 'fressen' but an anglicized version of it. But Unknownhttps://www.blogger.com/profile/17979073732877557827noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-9115789153622956832017-12-24T15:55:31.442-05:002017-12-24T15:55:31.442-05:00Part Three (thankfully the final part!!)
I, on th...Part Three (thankfully the final part!!)<br /><br />I, on the other hand, instantly notice, become fascinated by, and wildly speculate about any linguistic anomalies I encounter. So, in this case, why would the German language, practically uniquely in the world, use essen to refer to humans eating and fressen to animals? Is it that Germany, in recent centuries the European hub of the arts and Unknownhttps://www.blogger.com/profile/17979073732877557827noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-29793418660251112962017-12-24T15:51:23.544-05:002017-12-24T15:51:23.544-05:00Part Two:
But before I tell you the rest of the s...Part Two:<br /><br />But before I tell you the rest of the story, I must pause to impart this crucial fact to you. My mother studied German in school, and of course knew the Yiddish that practically every New Yorker knew back then (and remember, Maria, Yiddish is a German dialect that differs only slightly-- and predictably-- from standard German. The two are much closer than Spanish and Unknownhttps://www.blogger.com/profile/17979073732877557827noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-80769023011012838972017-12-24T15:49:01.104-05:002017-12-24T15:49:01.104-05:00Maria! Hello!
You said, "Richard, what love...Maria! Hello!<br /><br />You said, "Richard, what lovely words! Thank you!"<br /><br />And I say, "Maria, what lovely words of your own you uttered in response! Thank YOU!"<br /><br />I find it soooo very interesting that you describe yourself as "a student and lover of languages". I wish-- with a fervor that would surely astonish you, Maria!-- that more people inUnknownhttps://www.blogger.com/profile/17979073732877557827noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-43223616272503221782017-12-23T18:43:20.104-05:002017-12-23T18:43:20.104-05:00Richard, what lovely words! Thank you! You have ...Richard, what lovely words! Thank you! You have a true mastery of the English language, and being a student and lover of languages, I love the Yiddish term, "macher". I feel honored that you consider me to be a 'macher extraordinaire', and I hope to be able to live up to it throughout the years. Thank you very much!<br /><br />I agree. It is preposterous that we find Maria de la Torrehttps://www.blogger.com/profile/17315221071837223412noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-87460013892355065412017-12-23T02:06:18.288-05:002017-12-23T02:06:18.288-05:00Maria de la Torre: [What a majestic name, based on...Maria de la Torre: [What a majestic name, based on just the SOUND of it, and how especially appropriate for YOU, based-- more importantly-- on the MEANING of it ('of the watchtower', in English-- can there be a name more suitable than that for someone who has assumed the role of standing guard over her community of fellow sufferers, alerting us to the slightest movement in the underbrush Unknownhttps://www.blogger.com/profile/17979073732877557827noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-82993278629632440012017-12-22T20:39:37.151-05:002017-12-22T20:39:37.151-05:00I would like to take this opportunity to reply to ...I would like to take this opportunity to reply to some of the comments, concerns, and recommendations expressed in this post. These are the very topics I receive in emails, facebook messages, and posts in the MEBO Support Group on a daily basis from sufferers. When I present questions to the extensive list of experts we have consulted with, their reply is always prefaced with the declaration Maria de la Torrehttps://www.blogger.com/profile/17315221071837223412noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-80172033412649915132017-12-22T07:38:38.733-05:002017-12-22T07:38:38.733-05:00The following link to an article written by Dr. Ha...The following link to an article written by Dr. Hazen's team states that DMB is a TMA lyase activity inhibitor, and lists naturala product in existing foods or alcoholic beverages that contain DMB:<br /><br />"Of the choline TMA lyase activity inhibitors identified, we suspected that DMB, given its structure, might be relatively non-toxic, and possibly even found as a natural product in Maria de la Torrehttps://www.blogger.com/profile/17315221071837223412noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-74931892896585272412017-12-21T22:48:35.481-05:002017-12-21T22:48:35.481-05:00blogcontributor2: I'm the one who wrote the co...blogcontributor2: I'm the one who wrote the comment asking about which particular EVOO are beneficial in our condition. As I recall, in the article I read that quoted the expert (and provoked my question today), the man was quite emphatic in stating that only some EVOO brands had a positive effect, and if I'm remembering correctly he mentioned that it was the 'fruitier' ones thatUnknownhttps://www.blogger.com/profile/17979073732877557827noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-69606021706532897042017-12-21T21:29:51.083-05:002017-12-21T21:29:51.083-05:00Re EV Olive Oil, I think Maria may have wrote that...Re EV Olive Oil, I think Maria may have wrote that post, as getting DMB from food is not a route I have an interest in. IMHO I would guess all EV olive oils probably contain DMB. Maybe it's a general rule such as the darker the color the more DMB, but I do not know. blogcontributor2https://www.blogger.com/profile/03633940291854607039noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-70811386681270355922017-12-21T15:28:04.983-05:002017-12-21T15:28:04.983-05:00I hope you guys don't mind a comment that'...I hope you guys don't mind a comment that's less on the latest blog post and more on an earlier post that I only came upon recently, the one concerning the benefits of extra virgin olive oil in our condition. But the articles I read specified that only CERTAIN extra virgin olive oils worked in the desired way--but it didn't say which ones. Could someone here-- or the blogger Unknownhttps://www.blogger.com/profile/17979073732877557827noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-9187990065924418902017-12-21T12:26:26.079-05:002017-12-21T12:26:26.079-05:00I see an organization by the name of Dermetel. Org...I see an organization by the name of Dermetel. Org is selling dmb supplement for 125 is this legit or a scam. Pkase help is to verify.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-33930648387052265762017-12-21T08:49:07.041-05:002017-12-21T08:49:07.041-05:00I hope this would be persued and that fecal/gas sm...I hope this would be persued and that fecal/gas smells will also be investigated. They say "there is no interest yet"!!! :((. Annonimoushttps://www.blogger.com/profile/06269494656453071593noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-59019538815228730392017-12-21T04:21:19.845-05:002017-12-21T04:21:19.845-05:00not got access to the paper. i guess this is the a...not got access to the paper. i guess this is the announcement paper. blogcontributor2https://www.blogger.com/profile/03633940291854607039noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-38639151226306852172017-12-20T18:25:58.431-05:002017-12-20T18:25:58.431-05:00That is fantastic news. Will they pursue a treatme...That is fantastic news. Will they pursue a treatment as well or only exploratory?Anonymousnoreply@blogger.com