tag:blogger.com,1999:blog-3652036210877702504.post6956773926864050499..comments2024-03-26T08:33:06.926-04:00Comments on The MEBO Blog: Exciting news on trimethylaminuria research in AustraliaUnknownnoreply@blogger.comBlogger10125tag:blogger.com,1999:blog-3652036210877702504.post-37646435737080320972016-05-05T10:43:41.166-04:002016-05-05T10:43:41.166-04:00please write me an email with this question, and w...please write me an email with this question, and we can discuss it. maria.delatorre@meboresearch.orgMaria de la Torrehttps://www.blogger.com/profile/17315221071837223412noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-72270297648519203042016-05-04T01:39:07.137-04:002016-05-04T01:39:07.137-04:00If there is a support group for people like us, pl...If there is a support group for people like us, please post a link. Its hard for me to maintain a job and be around people without being talked about or snide comments. I appreciate that there are researchers on it, but I don't want to lose to my insecurities that developed because of this. I trying to keep it together. Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-10058948468257780992015-08-27T11:05:07.631-04:002015-08-27T11:05:07.631-04:00Hang in there. There is very promising research f...Hang in there. There is very promising research for a treatment going on as of now(Trinzyme). We are the closets we have ever been to a treatment. There is a reason to be optimistic!! Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-18805405986457232852015-08-24T14:15:18.554-04:002015-08-24T14:15:18.554-04:00My life is just beyond miserable. Please get us a ...My life is just beyond miserable. Please get us a cure for this nightmareAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-2569086882816621292015-03-28T19:20:40.710-04:002015-03-28T19:20:40.710-04:00I feel depressed and I cannot open up my situation...I feel depressed and I cannot open up my situation to others. I really hope there's a cure soon.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-37174967796348032292015-03-11T21:30:48.084-04:002015-03-11T21:30:48.084-04:00Same here. I drive a city bus and everyday is hel...Same here. I drive a city bus and everyday is hell. People give me looks of confusion. I wish the funding would go through so we can just be normal again. I cry sometimes and ask why me.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-35504089773555701272015-03-01T06:10:08.991-05:002015-03-01T06:10:08.991-05:00Still no cure? :( My life has been a NIGHTMARE! te...Still no cure? :( My life has been a NIGHTMARE! tears and so much more:(Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-67440402624972469172013-02-13T10:11:44.169-05:002013-02-13T10:11:44.169-05:00Unfortunately funding could not be found for the p...Unfortunately funding could not be found for the project. There is a small funded study going on at Monell just now that should give results soon. Also it is hoped that other projects may be possible in the future.blogcontributor2https://www.blogger.com/profile/03633940291854607039noreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-49092351876838581332013-02-13T00:51:20.463-05:002013-02-13T00:51:20.463-05:00Any Progress on this. I am desperately waiting for...Any Progress on this. I am desperately waiting for the cure... :(Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-3652036210877702504.post-54106773946003507012012-08-23T11:22:20.760-04:002012-08-23T11:22:20.760-04:00Sounds absolutely wonderful! A very, very big tha...Sounds absolutely wonderful! A very, very big thank you to Mr. Rob Brown and Dr. John Christodoulou! Anonymousnoreply@blogger.com