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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info: https://youtu.be/811v7RLXP9M
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country
MEBO TMAU TESTING DISCONTINUED
(2012-2017)

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts

MEBO TMAU Videos

Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
rareconnect.org TMAU

Popular Posts (last 30 days)

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

https://www.meboblog.com/2023/01/denver-tmau-test-survey-tbc-who-it-is.html

Tuesday, July 22, 2008

Your MD can do the TMAU urine test via the Mayo Clinic test service


The Mayo Clinic accepts urine samples for TMAU testing only with your Physician's written orders
for the Mnemonic Test WILD105, for the cost of $144.20. As per the Customer Service Lead at the Mayo Clinic instructions, please see their website for additional information, “Please utilize our Mayo Medical Laboratories website at http://www.mayomedicallaboratories.com/. This site will guide you in getting a specimen to use for testing. If you have further questions please call 800 533 1710”.

The Mayo Clinic also faxed us the form below for us to print and give to our physician so that he/she prescribe the testing procedure; this form includes instructions on how to handle and ship the specimen. We may then mail the physician’s order and the urine sample to:

The Mayo Clinic Medical Laboratories,
Superior Drive Support Center
3050 Superior Drive NW
Rochester, MN 55901

The Mayo Clinic test page : http://www.mayomedicallaboratories.com/test-catalog/Overview/90544

Customer Service staffed with 24-hour personalized service:
http://www.mayomedicallaboratories.com/customer-service/index.html

United States, Canada
· 800.533.1710
· 507.266.5700
· mml@mayo.edu
International
· 507.266.5700
· mmlglobal@mayo.edu


Copy and paste form below with full instructions for your physician and lab

Mnemonic -
WILD105

Mayo Unit Code -
90544

Fee -
$ 144.2

Test Name -
TRIMETHYLAMINE (FISH ODOR), URINE

CPT Codes -
82491, 80500

Methodology -
GC Gas Chromatography

Test Notes -
Samples must be shipped Monday - Wednesday.

Referral Lab -


Transport Method and Temperature -
15-20 ml RANDOM FROZEN- URINE and/or aliquot of post-load speciment.
Adjust urine to pH -5.0 using a small volume of concentrated HCl.
Fill several GLASS tubes (glass screw-cap tubes or glass red-top vacutainer tubes)
HALF FULL to allow for expansion of the specimen due to freezing.
FREEZE, CUSHION WELL TO AVOID BREAKAGE.
TRIMETHYLAMINE IS A HIGHLY VOLATILE COMPOUND AND WILL BE LOST FROM THE SPECIMEN IF THESE INSTRUCTIONS ARE NOT FOLLOWED.
SPECIMENS SHIPPED IN PLASTIC OR NOT FROZEN WILL BE REJECTED.




Update: A full list of known TMAU test labs can be seen on our MeBO Map

Note: Your MD can alternatively send a sample direct to the Arkansas Lab for a trimethylaminuria urine test

Important : The Trimethylaminuria urine test is a challenge test. A dose of choline should be taken. It is currently unclear how the Mayo clinic advise the use of choline in the test.

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