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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

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MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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MEBO Metabolic Malodor Survey (international) for Dr Hazen click here
click to Read more/less

survey for ANYONE who identifies with METABOLIC MALODOR

begun : Oct20
end : no ending for now

Regular readers will know that Dr Stan Hazen et al at Cleveland Clinic are developing a TMA-blocker pill, as they proposed in a 2011 paper that TMAO is a factor in CVD. Recently Dr Hazen and colleagues contacted MEBO as they have always thought they could also help with TMAU. This survey is to give them an idea of the 'state of the community'. It is a "version 1". They may not even look (though they have access permission), but it could be useful to give them an overview of the community

MEBO had a zoom call with Dr Hazen and his team in October. Another zoom call is planned when they have time

This is a GOOGLE FORMS survey

short url for survey :

current participants : 113 (update 18dec20)

Friday, September 5, 2008

Update on UK do-it-yourself trimethylaminuria testing


It turns out that Medichecks is sourcing the test from The Doctors Laboratory (TDL) in London. Ironically TDL may have added the test recently due to an email request. It's unknown what happened to Medichecks original source. Whatever made them raise their quoted price from £199 to £285 is disappointing if not a reasonable action. £285 seems too expensive.

TDL originally quoted the test being available at £160, but they still go by the 'broker' rule (i.e. doctor knows best). There will probably be a way around this. One potential possibility (to be confirmed) is testing through emed. They are a small group of doctors based in a UK hospital who are allowing people online 'help' for £20 a year plus £15 for each 'consultation'(?). If they agree to be the TDL referrer, that would make the price around £195. None of this is recommended since it's unknown if they will agree yet.

The minimum price possible seems to be around £124 (That is what Sheffield Childrens Hospital charge everyone (last years price). If through the NHS, it's up to the Dr to meet the charge if they want)

Also, TDL have been contacted to ask about the testing guidelines, since it seems more than sending out a plastic container seems needed by most labs. TDL have their own labs, but they said they are outsourcing the urine test from a "specialist genetic testing centre"

Any new information or feedback on this is welcome. The aim being to have a UK source for testing without a Dr at the cheapest price. 

As a thought, perhaps another potential scenario someday would be trusted sources being given referral status, perhaps with a (e.g.)$10 contribution added to a BO/Halitosis research/help/awareness fund, as an idea.

In the USA this isn't an issue since the Denver lab (when operating) allows anyone to test freely with no obstacles to overcome. The Arkansas lab also allows people to test but it is unclear if they allow people to test direct. They are the lab who accepts Mayo Clinic samples.


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