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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
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MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Friday, September 5, 2008

Update on UK do-it-yourself trimethylaminuria testing






Latest:

It turns out that Medichecks is sourcing the test from The Doctors Laboratory (TDL) in London. Ironically TDL may have added the test recently due to an email request. It's unknown what happened to Medichecks original source. Whatever made them raise their quoted price from £199 to £285 is disappointing if not a reasonable action. £285 seems too expensive.

TDL originally quoted the test being available at £160, but they still go by the 'broker' rule (i.e. doctor knows best). There will probably be a way around this. One potential possibility (to be confirmed) is testing through emed. They are a small group of doctors based in a UK hospital who are allowing people online 'help' for £20 a year plus £15 for each 'consultation'(?). If they agree to be the TDL referrer, that would make the price around £195. None of this is recommended since it's unknown if they will agree yet.

The minimum price possible seems to be around £124 (That is what Sheffield Childrens Hospital charge everyone (last years price). If through the NHS, it's up to the Dr to meet the charge if they want)

Also, TDL have been contacted to ask about the testing guidelines, since it seems more than sending out a plastic container seems needed by most labs. TDL have their own labs, but they said they are outsourcing the urine test from a "specialist genetic testing centre"

Any new information or feedback on this is welcome. The aim being to have a UK source for testing without a Dr at the cheapest price. 

As a thought, perhaps another potential scenario someday would be trusted sources being given referral status, perhaps with a (e.g.)$10 contribution added to a BO/Halitosis research/help/awareness fund, as an idea.

In the USA this isn't an issue since the Denver lab (when operating) allows anyone to test freely with no obstacles to overcome. The Arkansas lab also allows people to test but it is unclear if they allow people to test direct. They are the lab who accepts Mayo Clinic samples.

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