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MEBO - UBIOME study 2018

NCT03582826
ClinicalTrials.gov
MEBO Gut Microbiome Study
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Ubiome Gut EXPLORER : 10% OFF
Join/Watch the weekly
TMAU UP Podcasts

Videos : TMAU stories

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact map@meboresearch.org
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect
BannerFans.com
RESEARCH DETAILS

DONATIONS THRU 31-NOV-2016:
£ 943.03/GBP
$ 568.00/USD

TOTAL at today's ROE
£0.80/GBP = $1.00/USD

£1,398.07 = $1,745.14

MEBO UK PAYPAL FOR TRINZYME

********
MEBO US PAYPAL FOR TRINZYME

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Blog Archive

Friday, September 5, 2008

Update on UK do-it-yourself trimethylaminuria testing






Latest:

It turns out that Medichecks is sourcing the test from The Doctors Laboratory (TDL) in London. Ironically TDL may have added the test recently due to an email request. It's unknown what happened to Medichecks original source. Whatever made them raise their quoted price from £199 to £285 is disappointing if not a reasonable action. £285 seems too expensive.

TDL originally quoted the test being available at £160, but they still go by the 'broker' rule (i.e. doctor knows best). There will probably be a way around this. One potential possibility (to be confirmed) is testing through emed. They are a small group of doctors based in a UK hospital who are allowing people online 'help' for £20 a year plus £15 for each 'consultation'(?). If they agree to be the TDL referrer, that would make the price around £195. None of this is recommended since it's unknown if they will agree yet.

The minimum price possible seems to be around £124 (That is what Sheffield Childrens Hospital charge everyone (last years price). If through the NHS, it's up to the Dr to meet the charge if they want)

Also, TDL have been contacted to ask about the testing guidelines, since it seems more than sending out a plastic container seems needed by most labs. TDL have their own labs, but they said they are outsourcing the urine test from a "specialist genetic testing centre"

Any new information or feedback on this is welcome. The aim being to have a UK source for testing without a Dr at the cheapest price. 

As a thought, perhaps another potential scenario someday would be trusted sources being given referral status, perhaps with a (e.g.)$10 contribution added to a BO/Halitosis research/help/awareness fund, as an idea.

In the USA this isn't an issue since the Denver lab (when operating) allows anyone to test freely with no obstacles to overcome. The Arkansas lab also allows people to test but it is unclear if they allow people to test direct. They are the lab who accepts Mayo Clinic samples.

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