Robert Brown, the founder of the Australia Trimethylaminuria Support Group, is currently constructing a website. In the near future, it will very likely be first place in a google search of trimethylaminuria, a hub for sufferers as well as any researchers searching the condition. As well as support and education, he hopes to raise money for research. This could be the start of something important to sufferers of all metabolic odor conditions around the world. It is an example of how sufferers can use the internet to actively help themselves as a group. Thank you Robert, we all look forward to the website and to contributing to the fund.
The ATF is a not for profit organisation whose goal is to find better treatments and eventually a cure for trimethylaminuria (TMAU) and other as yet undescribed genetically mediated errors of metabolism that result in malodour disorders.
Better treatments and a cure for TMAU will only come about as a result of science. Until we can get the science done thousands of people will continue to suffer because of TMAU and similar conditions. Unfortunately, getting the science done costs money. Our primary goal is to raise that money.http://australiantrimethylaminuriafoundation.com update: New website is now proposed to be at this location :
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