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MEBO TMAU TESTING CURRENTLY SUSPENDED INDEFINITELY

MEBO - UBIOME study 2018

'PRESS RELEASE'

NCT03582826
ClinicalTrials.gov

MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production
& PATM

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person

NO LONGER RECRUITING

Participation info : LINK English

MEBO Map Testing & Meetups


Full details : https://goo.gl/TMw8xu
want listed ? contact info@meboresearch.org

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or contact
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BO Sufferers Podcasts

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Petitions

TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study
NCT02683876

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned


Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
EURORDIS and
NORD Member Organization
See RareConnect

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Blog Archive

London TMAU meeting with Prof Liz Shephard
19th Oct 11am - 1pm
St Mary's Hospital
Praed St, Paddington
London W2 1NY
click to read more
more details : karen.james@meboresearch.org

MEBO Research Clinical Trials

Click here to read details of the MEBO Clinical Trials
NCT03582826 - Ongoing not recruiting
Microbial Basis of Systemic Malodor and PATM Conditions (PATM)
United States 2018 - ongoing

NCT02683876 - Completed
Exploratory Study of Relationships Between Malodor and Urine Metabolomics
Canada and United States 2016 - ongoing

NCT03451994 - Completed
Exploratory Study of Volatile Organic Compounds in Alveolar Breath
United Kingdom and United States 2013 - ongoing

NCT02692495 - Completed
Evaluation of Potential Screening Tools for Metabolic Body Odor and Halitosis
United Kingdom 2009 - 2012

Tuesday, November 11, 2008

The Australian Trimethylaminuria Foundation website under contruction

Robert Brown, the founder of the Australia Trimethylaminuria Support Group, is currently constructing a website. In the near future, it will very likely be first place in a google search of trimethylaminuria, a hub for sufferers as well as any researchers searching the condition. As well as support and education, he hopes to raise money for research. This could be the start of something important to sufferers of all metabolic odor conditions around the world. It is an example of how sufferers can use the internet to actively help themselves as a group. Thank you Robert, we all look forward to the website and to contributing to the fund.

The ATF is a not for profit organisation whose goal is to find better treatments and eventually a cure for trimethylaminuria (TMAU) and other as yet undescribed genetically mediated errors of metabolism that result in malodour disorders.
Better treatments and a cure for TMAU will only come about as a result of science. Until we can get the science done thousands of people will continue to suffer because of TMAU and similar conditions. Unfortunately, getting the science done costs money. Our primary goal is to raise that money.
http://australiantrimethylaminuriafoundation.com

update: New website is now proposed to be at this location :

http://www.tmaufoundation.org.au/

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