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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO Karen
at UK Findacure conf 2020

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Sunday, November 8, 2009

2nd tester's results in the MeBO-Biolab Gut Dysbiosis in systemic body odor and halitosis study

Currently, MeBO Research is carrying out a study with co-operation from Biolab Medical Unit to determine if people with body odor and/or halitosis have any gut dysbiosis condition as detected by the tests and biomarkers chosen. In our 2nd tester's test results, the biomarkers tested were ethanol for yeast small intestine overgrowth, some alcohols associated with anaerobic gut bacteria overgrowth, fatty acids associated with 'friendly' anaerobic gut bacteria, D-lactate which is associated with lactic acid overgrowth in the small intestine, indicans which is associated with protein bacteria fermentation, and a slight elevation of gut permeability.

The 2nd tester is a lady in her 50s who describes herself as having a sewage/garbage/rotten cabbage/sulfur/damp/dirty odor condition, which she has had for 10-20 years. She believes it is systemic. She has thrush issues, as well as issues with allergies/headaches, cystitis, and constipation. Her TMAU results were negative including the DNA test.

Her results are as follows (to be made into a table later) :

  1. intestinal permeability : Slightly increased permeability to PEG at the midrange level between mwt 374 to 506
  2. indicans : negative
  3. d-lactate : 156 umol/L (normal less than 60)
  4. gut fermentation Profile: raised ethanol fermentation consistent with yeast overgrowth as follows,
  • *ethanol 140 (normal would be less than 22)
  • *some anaerobic bacteria alcohol metabolites were slightly elevated
  • * quite a few 'friendly' bacteria fatty acids were low
More comments will be made on these results later.

The MeBO-Biolab survey is still open to anyone in the UK and Ireland with body odor and/or halitosis, preferably metabolic body odor and/or halitosis, even if you have been diagnosed positive for TMAU. Unfortunately, since MeBO has only just recently begun operating as a non-profit organization, the volunteers would need to pay their test costs (£146). The MeBO questions in the application/survey form are to collate data and look for patterns. Volunteer testers only need to give their name and email address to MeBO in this survey. The other private details will be handled by Biolab directly when you test.

The form to test in MeBO-Biolab Gut Dysbiosis Study is here :
MeBO-Biolab gut dysbiosis in body odor or halitosis study form-REVISED

MeBO is aiming to become a charity, which will cost approximately £1,500.00 to accomplish. Once it achieves this status, it will be in a better position to pursue grants for larger-scale research efforts not only in the UK but abroad as well. MeBO is looking to actively promote research into metabolic body odor and halitosis, especially fecal/gas/garbage body odors (as they are called on the forums). In the meantime, it will continue forward with such studies as this Gut Dysbiosis Study to gather data to identify common patterns amongst sufferers.

Donate to MeBO Research

What MeBO is doing

About privacy:
see Donate page

Currently raised:
233.00 GBP = 386.03 USD
Another volunteer has offered to do a larger range of tests soon, which we will post about beforehand. This case study will cost quite a bit more. Biolab has offered a 25% discount for this single case study, and MeBO would like to cover some of this costs, seeing her testing as being for the good of the community. This volunteer wanted to pay for all her test costs, which would be approximately £400 at current estimates (the list of tests isn't confirmed yet), but MeBO would like to pay £125 of this expense. Any contributions towards this £125 target is appreciated. If anyone would like to donate in ways other than through PayPal, please feel free to contact Maria by email,


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