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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Monday, September 13, 2010

Sunday at the London Body Odor / Halitosis meetup 2010

Hi Everyone,

Our wonderful sunny yet cool last day at the Festival seemed to have much more going on than the last three I have attended previously, or maybe the weather just gave us the opportunity to be more involved in Festival activities this time. Not only did we have the opportunity to discuss at the Tattershall Castle how to better understand and manage our respective conditions, which are not all the same and do not all benefit from the same protocols, we also went on a cruise on the Thames, saw a Carnival that displayed elaborate costumes and floats, listened to great music from India and Cuba here in England, hehe… There were various types of foods for all tastes to select from the wide variety of food stalls, and everyone had the opportunity to select from a varied selection of foods to eat according to each respective needs. The fireworks came with a bang with surreal colors against the dark sky at the closing of the celebration, with the “WOWs” and “Ooos”, applauses and whistles resounding throughout the Thames late into the night. What a beautiful day!

I took many pictures and videos that I will edit when I return to Miami to show everyone on this site and in Arun's forum. I hope it will give you the "good feel” of the event, and that you will enjoy them as much as we did.

All my love to all!


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