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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Saturday, November 13, 2010

All welcome to the London Christmas meetup : 11th December

Annual London Body Odor and Halitosis Christmas meetup

Arranged by Arun Nagrath
Meeting at All bar One (outside seats) in Leicester Square, London
Saturday 11th December, 1pm onwards
All are welcome

Christmas is nearing, and that means the annual London body odor and halitosis Christmas meetup is around the corner; arranged as always by Arun Nagrath, who has arranged the meetups in the UK for a number of years, with great success and increasing numbers.

Like last year, the meetup will begin in the outside seats at All Bar One located in Leicester Square, London. Usually most people who attend cannot smell each other. Anyone wishing to attend can contact Arun at the email address below or on his mobile, or turn up on the day. You will be heartily welcomed and be at ease with others who are going through the same emotions.

Arun's post on the forum announcing the meeting can be read below and the link to the thread is given. Come along and relax and enjoy.

Message from Aran Nagrath

Our next meetup for both breath and body odour sufferers is coming up soon!

We are having a meetup for breath and body odour sufferers 1pm onwards on saturday 11th december 2010. Initially, we will meet outside All Bar One, Leicester Square, London, England.

If anyone is interested in meeting other members (sharing tips and experiences) call me on my mobile 07753 492 759 or email me on

90% of the time, people with halitosis or b.o can't smell other members at the meetups. This is a good reason to come!


Arun's report of previous London Christmas meetup 2008

London Xmas meetup : Are you going ?


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