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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
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Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, March 18, 2011

Hotel booking special deadline for Washington DC Meetup

Tomorrow is the last day to book your suite at the MEBO rate of $89/room (not per person) per night at Embassy Suites Dulles Airport for our Washington DC meetup for 08 April 2011 - 11 April 2011. You can reserve a room without obligation using a credit card to guarantee the rate. Funds will not be held by your credit card account nor will charges be made to it until you check out after your hotel stay. You can cancel your reservations up to 24 hours prior without a penalty. For online reservations, please visit the website, and book your hotel stay directly, or call 1-800-445-8667 and give the MEBO Group/Convention Code:MER

Room rates include :
  • Complimentary daily full breakfast per person,
  • Complimentary daily 2-hour Manager's Reception, serving alcoholic and non-alcoholic beverages and snacks
  • Complimentary Dulles Airport shuttle,
  • Free self-parking.

After midnight Friday night, the rooms held for us will go back into the hotel's inventory, and you could still reserve your suite, but with regular rates and more restrictions.

I hope to see many of you there. We have a full agenda consisting of a 4 hour conference on Saturday morning at 11:00a.m., after our buffet breakfast, which ends at 10:30a.m. on Saturday, eating meals together, socializing at the Manager's Reception, and visiting sites at this beautiful city.

Our conference will begin at 11:00a.m. and consist of the following topics:
  1. Even though Dr. Cheryl Fields (Dr. Stillstanding) cannot attend the meetup in person, she has offered to do a simple conference call with a speakerphone on the table (not a webinar) during this phase of our meetup, and do a presentation on employment and/or human relations/community resources with us followed by an informal Q&A and discussion session. (approximately 1 hour or less). Additional information about the logistics of the conference call will be forthcoming.
  2. Another member will do a presentation on Dr. John Cashman's Interview posted in MEBO's Blog on the FMO3 metabolic enzymes and some its various types of deficiencies, including but not limited to TMAU, resulting in multiple types of odor resulting from different types of substrates. (approximately one hour or less)
  3. I will close the session with information on Raising Awareness Campaign, including but not limited to community members printing and placing flyers in strategic locations, and to discuss MEBO's International Testing Programs, including but not limited to TMAU, MEBO's International Program, with new testing and research opportunities MEBO is pursuing worldwide, and Glenna's Public Relations activities working closely with other body odor organizations and establishing relations with our US Senators to promote the NORD Fund, other research efforts and general raising awareness efforts. (approximately 1 hour or less)

We expect to be able to find a media that we can use that allows anyone from around the world to call in to this conference call to be a part of it. Everyone would be welcome to join us on the call, though no one would be required to speak during the call unless one chooses to do so.


María de la Torre
President and Executive Director


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