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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

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MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

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BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

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Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Thursday, February 9, 2012

A Legal Perspective on employment protections for body odor

A fellow sufferer with IBS related body odor, who wishes to remain anonymous and who is also a lawyer, was inspired to write a 12-page brief treatise as an adjunct to Cheryl Field's April 2011 MEBO Presentation on Social Security and Employment Discrimination. We are most grateful for this thorough and very informative pro-bono work written from the heart for fellow sufferers.

Our most profound gratitude goes to this lawyer for providing us with these 12 pages of meaningful information.
Even though the United States, England and Wales practice Common Law and have many similarities, each has, of course, different laws based on precedential decisions of courts in each country. However, it is likely that they would have a similar "perceived disability" theory, but unfortunately, we don't know how successful it's been. Perhaps there is a lawyer in the UK that would be willing to do a comparison document to this one??? It would be much appreciated.

The following are some excerpts from this treatise,


For full article, please click on link.

This brief treatise is an adjunct to Cheryl Field's April 2011 MEBO Presentation on Social Security and Employment Discrimination. Although created by a licensed U.S. attorney, nothing detailed in this document should be construed as providing legal advice or creating an attorney-client relationship. It was created purely for information purposes and not as an attempt to solicit clients. You should consult with a local attorney with respect to any topic contained herein.

For ease of use, this document is in Question and Answer Format.

Q. I have body odor/breath odor issues. Am I protected by Equal Employment Opportunity Commission (EEOC) employment discrimination laws?

A. You could be if:
(a) You are/were/or would be employed as an employee (not an independent contractor)by a "covered employer or entity" and
(b) Your body odor/breath odor illness qualifies as a disability under the American withDisabilities Act (ADA)...

Q. Does my body odor/breath odor constitute a disability under the ADA?

A. Maybe. There are no laws or regulations that specifically address body odor/breath odor as potential qualifying disabilities. However, recent case law indicates such issues could be considered disabilities in certain situations. See Questions below. Disability determinations are generally handled on a case by case basis...

Q. Doesn't having a persistent or frequent body odor/breath odor issue substantially limit the major life activity of working? I get lots of negative responses to the point I don't want to work or even leave the house.

A. It is possible to be disabled on this basis but is harder to prove for body odor/breath odor sufferers...

Our most profound gratitude goes to this lawyer for providing us with these 12 pages of meaningful information. Thank you. You are a great asset to our international community.


María de la Torre
Founder and Executive Director

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