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March20 podcast Dr Hazen
anti-TMA pill in a year or 2 ? (scroll 12 mins)

Additional info:
MEBO Karen
at UK Findacure conf 2020

Scroll down and select country

MEBO Map Testing & Meetups

Full details :
want listed ? contact

MEBO - UBIOME study 2018



MEBO Gut Microbiome Study
"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"
Funded by uBiome Research Grant

"Microbial Basis of Systemic Malodor and PATM Conditions (PATM)"

Dynamics of the Gut Microbiota in
Idiopathic Malodor Production

Started May 2018 - Ongoing

Current people sent kits : 100/100
3 kits per person


Participation info : LINK English

MEBO Private Facebook Group
to join : go to
or contact
Join/Watch the weekly
BO Sufferers Podcasts



TMAU Petition world
TMAU UK end total:262
TMAU UK ends 23/01/20
TMAU Petition USA end total 204
USA : Moveon open
TMAU (Dominican)
Metabolomic Profiling Study

Start : Aug 2016
Stage 1 : 27 Canadian volunteers to test
Latest click here (26 oct) :
17 samples returned

Note : Stage 1 is Canada only.
Return cut-off date : passed
Analysis can take 6/8 weeks
Analysis start in/before Nov
MEBO Research is a
NORD Member Organization
See RareConnect TMAU

Popular Posts (last 30 days)

Upcoming get-togethers

Let us know if you want a meetup listed
Follow MeBOResearch on Twitter

Blog Archive

Denver TMAU Test Lab survey click here
click to Read more/less

USA survey for anyone who wants to improve Denver TMAU test

begun : Dec22
end : no ending for now

A trainee genetic counselor is working at the Denver TMAU test lab. Probably as part of her training. As a project she wishes feedback on any aspect of the Denver TMAU test and process. You can fill in the survey and/or email her (email address is in survey). It's meant for USA people, but perhaps others can give their view too (as we have so few opportunities).

quote from her rareconnect post

"Hello all! I wanted to make you aware of a research study being conducted to better understand the experience and needs of individuals with trimethylaminuria with a goal of being able to create improved patient and healthcare provider education materials. Any participation is completely voluntary and all responses remain confidential. Feel free to use the contact information within the link with any questions or share the survey with others with TMAU."

see this post for more details

Friday, February 17, 2012

Recruiting volunteer help for MEBO Programs

I am very happy to say that MEBO Research US and UK have grown very much these past months with the increased numbers of members in its directorship. As a result, the large volume of work has quadrupled, as new programs are being launching this year, as new directors bring with them new projects. These international programs consist of the MEBO-Menssana Alveolar Breath Test, the MEBO TMAU Test, starting the MEBO Membership List, and the Quality of Live research study by Dr. Colin Harvey-Woodworth. Each of these and other projects that are on the works entails a great deal of background, as those listed below.

  1. Web designing
  2. To write programs for our projects,
  3. a. Membership list, b. Scientific survey database, c. Create interactive test requisition forms and surveys in LimeSurvey, such as the one already done for the MEBO TMAU Test Requisiton Form.
  4. Bookkeeping with QuickBooks,
  5. Helping with secretarial work, including writing emails, letters, minutes of Board Meetings, maintain shippers' accounts for the MEBO TMAU and the Menssana tests, etc.
  6. Fundraising activities
  7. Raising awareness activities (writing emails and letters) during specific drives
  8. Accounting (occasionally)
  9. Legal services (occasionally)
  10. Translators into as many languages as possible – take any post from the English or Spanish blog and translate them into other languages.

Since MEBO is comprised solely of volunteers who want to work toward promoting research and uniting to find a cure, any and all of these tasks would be very flexible in the amount of hours expected a day, week, month, or year that a sufferer may want to invest in them. It is up to the volunteer to determine how much and when to donate time and work.

I am most grateful to each and every person who has contributed to MEBO Research's aims in one way or another. Our cause is as strong as the participation invested by members of our international community in as many languages as possible.

If anyone is interested in volunteering, please send an email to


halitosis research
María de la Torre
Founder and Executive Director

A Public Charity
MEBO's Blog (English)
El Blog de MEBO (español)
The MEBO Forum Please sign the MEBO Petition

body odor petition
MEBO Research


Anonymous said...

It seems we are having a hard time getting chronic odor recognized for disability . I feel this may be partly due to our subjectivity . For this reason I was thinking it is important to get the opinion of employers and businesses about odor .

What do employers think about hiring someone who has severe odor due to hygiene choice ?

Then how do they feel about someone with severe odor due to a medical issue ?

How about businesses ? There are lots of places touting "odor free" signs. Airlines ,Buses, trains, stores, all the places we may dread. What is the consensus for how they treat people with strong odor ?

We can say all day how its horrible they way we are treated . How its hard to get jobs, the anxiety ,etc.. . Because its coming from the sufferer ,maybe its swept under the rug . My suggestion is to inadvertently have the other side speak for us instead.

Would anyone like to write a brief questionnaire to employers /businesses to get input on strong odors ?

Please contact me
Thank you folks

Feb 18, 2012, 2:59:00 AM
Maria de la Torre said...

Thanks jojo for your recommendation. I agree, this would be a very good approach. I like the idea of targeting those businesses that are places most dreaded by sufferers.

I would like to see a group of sufferers get together to come up with a few questions to ask these businesses, and a few persons who would help get email addresses of the Public Relations or Human Resources Department of these companies, so that we can send them the questions.

Maybe this could be a topic of discussion in today's Skype call? All readers of this post are encouraged to present their questions to employers in this comment box.

Feb 18, 2012, 8:35:00 AM
aj.mcclay said...

Cheryl fields should be included in this!

Feb 22, 2012, 4:10:00 PM
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